background and aim: hemophilia is among the most prevalent and the most serious coagulation disorders which causes different problems for both the afflicted children and their families. this study was undertaken to investigate the relationship between coping strategies and quality of life (qol )among the principal caregivers of children with hemophilia. methods: this correlational study was con...

This study aimed to examine differences in subjective psychological well-being between husband and wife caregivers of persons with Alzheimer's disease in comparison to the psychological states of noncaregiver husbands and wives similar in age and ethnicity. The principal comparison of interest was whether differences between husband and wife caregivers were greater than those between comparison...

It is projected that, in the 21st century, the majority of the world's older people will be living in Asia. After Japan, Singapore is the most rapidly aging country in Asia. With an increasing life expectancy, many older persons will require health and instrumental care during later life stages. In Singapore, close to 95% of older people co-reside with family members, highlighting the importanc...

BACKGROUND Delirium is one of the most distressing and difficult to manage problems in advanced illness. Family caregivers have a unique view of the progression of delirium. OBJECTIVE This study examined precursors to delirium from the perspective of family caregivers. DESIGN This study utilized a two-stage concept mapping design that began with semistructured interviews with caregivers of ...

INTRODUCTION Informal caregivers provide care to dementia patients, and this service prolongs their stay at home. OBJECTIVES To describe characteristics of dementia patients in the province of Alicante, as well as the profiles and roles of caregivers who assist them. PATIENTS AND METHODS Multi-centre prospective study carried out in 4 neurology departments in Alicante (June 2009 to January ...

Cerebrovascular diseases are a public health and social policy priority in Europe due to their high prevalence and the long-term disability they may result in (as the principal cause of handicap). Increasingly, family caregivers take over the care at home of these patients. Two years post-stroke, our study analyzed the feelings of family caregivers from Luxembourg and northeastern Portugal towa...

background: providing care to a disable relative at home exposes the caregiver to a potentially higher risk of physical and mental problems. we measured health-related quality of life (hrqol) and its determinants among the caregivers of the iranian survivors of the iran-iraq war (1980–1988) with bilateral lower-limb amputation. methods: data were collected from 464 individuals comprising war-re...

As part of long-term care reforms, home-care organisations in the Netherlands are required to strengthen the linkage between formal and informal caregivers of home-dwelling older adults. Information on the variety in mixed care networks may help home-care organisations to develop network type-dependent strategies to connect with informal caregivers. This study first explores how structural (siz...

PURPOSE Little is known about the specific behavioral strategies used by families to manage the physical dependency of persons with Alzheimer's disease and related disorders (ADRD). This study reports the psychometric properties of the Task Management Strategy Index (TMSI), a measure designed to identify actions taken by caregivers to simplify everyday self-care tasks for persons with ADRD. Rel...

Caring for persons affected with dementia is associated with substantial psychological strain as evidenced by high rates of psychiatric morbidity and high levels of caregiver strain. Dementia care in developing countries will continue to be provided by immediate family members at home and is unlikely to be taken over by institutions due to socio-cultural reasons. This study aims to examine the ...