Research outlets are increasingly adopting open data policies as a requisite for publication, including studies with human subjects data. We investigated whether open data policies influence participants' rate of consent by randomly assigning participants to view consent forms with and without discussion of open data policies. No participants declined to participate, regardless of condition, no...

Female twin pairs were identified from birth records, and their families invited to participate in a prospective study of the determinants of alcohol problems in women. We investigated sampling biases arising because of failure to locate families, or non-cooperation of families. Out of 2644 families with a live-born pair (born between July 1975 and December 1986) who survived beyond infancy, co...

BACKGROUND The aims of this study are to describe the methodological challenges in recruiting a follow-up sample of children referred to an interdisciplinary hospital child protection team (CPT) and to compare participating versus non-participating groups on several demographic variables and maltreatment characteristics. METHODS Of the 319 in- and outpatients referred to the CPT at University...

General practitioners participating in a multipractice study were compared with those who refused to participate. We found that younger doctors, doctors in partnerships, and doctors with many patients were represented more among participants. However, no correlation was found between the number of patients examined for urinary tract infection in connection with the study.

INTRODUCTION The growth of Internet users enables epidemiological studies to be conducted electronically, representing a promising methodology for data collection. METHODS Members of Ethics Committees, Clinical Researchers and Sponsors were interviewed using questionnaires sent over the Internet. Along with the questionnaire, participants received a message explaining the survey and also the ...

Do I wish to participate or not to participate in this program? That is the question that young people ask themselves when considering a new opportunity. What can be done to increase the likelihood that they will choose to participate in out-of-school-time (OST) programs? This chapter describes a qualitative study that examined reasons for participating or not participating in OST programs. Som...

This study aims to (a) examine the roles of knowledge, distrust in medical professionals, information sources, and 2 dimensions of religiosity (i.e., religious activity and religious belief) in influencing willingness to participate (WTP) in cancer clinical trials and to (b) compare the results for Caucasians and African Americans in order to inform future recruitment. An online survey was fiel...

BACKGROUND In population-based observational studies, non-participation and delayed response to the invitation to participate are complications that often arise during the recruitment of a sample. When both are not properly dealt with, the composition of the sample can be different from the desired composition. Inviting too many individuals or too few individuals from a particular subgroup coul...