The Expert Group, invited by European Commission’s Research Directorate-General, prepared 25 recommendations related to the use of genetic testing in health care systems and genetic testing as a method of research. This paper presents in detail the recommendations crucial for laboratory diagnostics and research. Genetic testing and genetic data, are a part of the spectrum of all health-care inf...

studies on the doctor-patient encounter, Robert Veatch defends the role that philosophy and theology have had in bioethical discourse and decision-making since the 1960s. Intermediate positions are developed by Alexander Capron ("socially situated, interdisciplinary medical ethics that seeks to protect professional judgement") and by Stephen Latham and Linda Emanuel, who emphasize that the very...

Population-based genetic research, including genetic epidemiology, shows tremendous potential to elucidate the role of genes as causal factors in complex and common human diseases. Like all research with human subjects, full realization of these benefits requires careful attention to its ethical conduct, establishing an appropriate balance between individual protections and the advancement of s...

Whilst the NHS provides genetic tests to detect rare monogenic disorders, such tests are strictly regulated and genetic counselling is provided to help people decide whether to take the tests and to help them interpret the results. The conditions that are screened for must fit a number of criteria including that the condition must be serious, and effective treatment or intervention must be avai...

BACKGROUND Although genetic research into Alzheimer disease (AD) is increasing, the ethical aspects of this kind of research and the differences between ethical issues related to genetic and non-genetic research into AD have not yet received much attention. OBJECTIVES (1) To identify and compare the five ethical issues considered most important by surveyed expert panellists in non-genetic and...