This book aims to enrich current debates on the ethics of disclosing genetic information. It comprises a collection of essays written by contributors with a range of disciplinary backgrounds: bioethics, genetic medicine, medical anthropology, philosophy, law and sociology, to cite a few. By adopting an interdisciplinary approach, the volume advocates for a theoretical and methodological extensi...

This paper seeks to examine the ethical questions surrounding the intentional manipulation of genes to achieve phenotypic modifications in humans. It is not concerned with distributive justice or the ethics of research, but rather with the debate over whether the technology of genetic engineering itself, once it is to a reasonable level proven both safe and effective, is ethical to use. The stu...

Introduction The development of the Human Genome Project has raised many privacy concerns regarding the use of genetic screening in employment, health premium coverage, and data-mining. Moreover, what causes extreme concern is the lack of direct government regulation addressing the use of such information. There is no law directly addressing this issue or who should be given access to this info...

1 Abstract The donors of human genetic resources deserve benefits in return for their contribution to scientific research. In the context of developing countries this claim holds as a matter of justice. But how can this demand be realised and implemented? This chapter looks at the role of ethics review as a possible benefit sharing mechanism. In particular the promising role of research ethics ...

Genetics research has shown enormous developments in recent decades, although as yet with only limited clinical application. Bioethical analysis has been unable to deal with the vast problems of genetics because emphasis has been put on the principlism applied to both clinical and research bioethics. Genetics nevertheless poses its most complex moral dilemmas at the public level, where a social...

Improving Nature? is guided by a simple set of premises t h a t the science o f genetic engineering is essential to discussing its ethics and, moreover, that a coherent set o f ethical principles cannot be developed solely from scientific comprehension. This stance is sensible, if not selfevident, in the examination o f any new technology. 3 The authors, Michael Reiss, a biologist at Cambridge ...