BACKGROUND Frontotemporal lobar degeneration (FTLD) is a relatively rare disease compared to Alzheimer' disease (AD), but nevertheless causes higher burden and stress to caregivers. Only little is known about the problems and needs of the caregivers of patients with FTLD. Such information is crucial for the development of caregiver support interventions. The aim of the current study is to syste...

OBJECTIVE To validate a parent proxy instrument to study the voice-related quality of life (VR-QOL) for the pediatric population. METHODS The voice outcome survey (VOS) was administered to 108 caregivers of children aged 2 to 18 years, who either had a tracheotomy or had achieved surgical decannulation. The VOS was altered so that each item was addressed to the parent proxy as opposed to the ...

the relationship between caring burden and coping strategies in hemodialysis patients caregivers     abbasi a [1] , ashrafrezaee n [2] , asayesh h [3] *, shariati a [4] , rahmani h [5] , mollaei e [6] , bathaei sa [7] , shoori bidgoli a [8]     received: 8 mar, 2012 accepted: 21 jun , 2012    abstract   bachground & aims: patients with end stage renal disease require long term treatment and car...

BACKGROUND The person with dementia should be treated as an unique person regarding symptoms directly associated with dementia, such as problems with memory, hallucinations, and delusions, as well as other physical, mental, or neurological deficits. The symptoms not directly typical of dementia, such as musculoskeletal disorders or depression, should be also be considered in order to improve th...

Guided by the life-course perspective, this study contributes to the family caregiving, aging, and disability literature by examining the daily experiences of three types of family caregivers in midlife and late adulthood. A sample of 162 caregivers from the National Survey of Midlife in the United States study completed interviews, questionnaires, and a Daily Diary Study. Multilevel models sho...

Research indicates that informal caregivers of stroke survivors often do not have the information necessary to adequately manage the recovery process at home. This article presents findings on the information sources and needs of stroke caregivers both in Puerto Rico and the Mainland United States. Data were collected from 120 caregivers (42 Puerto Rican, 78 Mainland) of veterans who had experi...

A diagnosis of cancer can be devastating for patients and their loved ones. We compared the intensity of anxiety and depression for 30 terminally ill cancer patients and 30 chronically ill patients and the quality of life of their most attendant caregivers. Hamilton depression and anxiety scales were used with the patients and the quality of life scale (family) was used with the caregivers. Can...

background: studies suggest that family caregivers of hemodialysis patients experience a high level of burden, which could lead to numerous physical and psychological problems. despite the need for adequate training and support, these caregivers are mostly neglected, and few studies have been performed in this regard. aim: to evaluate the effect of educational programs on the home care of hemod...