Balancing obligations : should written information about life - sustaining treatment be neutral ? Vicki Xa fi s , 1 Dominic Wilkinson , 2 Lynn Gillam , 3
نویسندگان
چکیده
Perinatal Ethics Unit, Discipline of Obstetrics and Gynaecology, Robinson Institute, The University of Adelaide, North Adelaide, South Australia, Australia Department of Neonatal Medicine, Robinson Institute, The University of Adelaide, Adelaide, South Australia, Australia Children’s Bioethics Centre, The Royal Children’s Hospital, Melbourne, Victoria, Australia Centre for Health and Society, University of Melbourne, Children’s Bioethics Centre, The Royal Children’s Hospital, Melbourne, Victoria, Australia
منابع مشابه
Balancing obligations: should written information about life-sustaining treatment be neutral?
Parents who are facing decisions about life-sustaining treatment for their seriously ill or dying child are supported by their child's doctors and nurses. They also frequently seek other information sources to help them deal with the medical and ethical questions that arise. This might include written or web-based information. As part of a project involving the development of such a resource to...
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BACKGROUND Communication with parents about end-of-life care and decisions is a difficult and sensitive process. The objective of the present study was to ascertain clinicians' views on the acceptability and usefulness of a handbook and web-based resource (Caring Decisions) that was designed as an aid for parents facing end-of-life decisions for their child. METHODS Qualitative interviews wer...
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BACKGROUND Written resources in adult intensive care have been shown to benefit families facing end of life (EoL) decisions. There are few resources for parents making EoL decisions for their child and no existing resources addressing ethical issues. The Caring Decisions handbook and website were developed to fill these gaps. AIM We discuss the development of the resources, modification after...
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BACKGROUND The information needs of parents facing end-of-life decisions for their child are complex due to the wide-ranging dimensions within which such significant events unfold. While parents acknowledge that healthcare professionals are their main source of information, they also turn to a variety of additional sources of written information in an attempt to source facts, discover solutions...
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