107th ENMC international workshop: the management of cardiac involvement in muscular dystrophy and myotonic dystrophy. 7th-9th June 2002, Naarden, the Netherlands.

Sixteen participants from Austria, France, Germany, Italy, the Netherlands and the UK met to discuss the cardiac implications of the diagnosis of muscular dystrophy and myotonic dystrophy. The group included both myologists and cardiologists from nine different European centers. The aims of the workshop were to agree and report minimum recommendations for the investigation and treatment of cardiac involvement in muscular and myotonic dystrophies, and define areas where further research is needed. During the workshop, all participants contributed to a review and assessment of the published evidence in each area and current practice amongst the group. Consensus statements for the management of dystrophinopathy, myotonic dystrophy, limb-girdle muscular dystrophy, Emery Dreifuss muscular dystrophy, facio-scapulo-humeral muscular dystrophy and congenital muscular dystrophy were produced. The need for further research to extend the evidence-base in certain key areas was also highlighted and outline proposals to resolve these deficiencies put forward. A summary of the cardiac implications of the disorders discussed is presented in Table 1.