Ethical aspects of genetic counselling.
نویسنده
چکیده
Ethical issues encountered in genetic counseling are examined in a general discussion, by a British specialist in clinical genetics, of the proper role of the genetic counselor. The counselor provides complete and accurate information on genetic conditions and presents reproductive options in an impartial, non-directive manner appropriate to the comprehension of the patient. Although the author supports patient autonomy in decision making, she cautions against automatic disclosure of all information gained through prenatal diagnosis, especially fetal sex.
منابع مشابه
Ethical aspects of genetic disease and genetic counselling.
With the reduction in diseases due to nutritional deficiencies and infection, disorders which are wholly or partly genetic are becoming relatively more important in all branches of modern medicine. Genetic counselling has developed in recent years from just explaining to an individual or a couple the risk of them producing a handicapped child, to the possibility in many cases of better diagnosi...
متن کاملEthical issues in genetic counselling with special reference to haemoglobinopathies
Genetic counselling is provided in places where genetic tests are carried out. The process involves pre-test counselling as well as post-test counselling to enable the individuals to face the situation and take appropriate decisions with the right frame of mind. Major ethical principles which govern the attitudes and actions of counsellors include: respect for patient autonomy, non-maleficence,...
متن کاملBioethical issues of preventing hereditary diseases with late onset in the Sakha Republic (Yakutia)
BACKGROUND Prenatal diagnosis of congenital and hereditary diseases is a priority for the development of medical technologies in Russia. However, there are not many published research results on bioethical issues of prenatal DNA testing. OBJECTIVE The main goal of the article is to describe some of the bioethical aspects of prenatal DNA diagnosis of hereditary diseases with late onset in gene...
متن کاملBeyond the disorder: one parent's reflection on genetic counselling.
As a mother of two sons with adrenoleukodystrophy the author of this paper writes about her experiences of genetic counselling following the diagnosis. She discusses the dilemmas, emotions and aftermath this knowledge has brought to her family and the roles she played. Personal concerns are raised about the values guiding genetic counselling which, she found, focused on the technical details wi...
متن کاملDirect-to-consumer genetic testing in Slovenia: availability, ethical dilemmas and legislation
INTRODUCTION Over the last few years, many private companies are advertising direct-to-consumer genetic testing (DTC GT), mostly with no or only minor clinical utility and validity of tests and without genetic counselling. International professional community does not approve provision of DTC GT and situation in some EU countries has been analysed already. The aim of our study was to analyse cu...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید
ثبت ناماگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید
ورودعنوان ژورنال:
- Journal of medical ethics
دوره 8 4 شماره
صفحات -
تاریخ انتشار 1982