Clinical characteristics of children with juvenile dermatomyositis recruited within the first 7 months of the CARRAnet registry
نویسندگان
چکیده
Purpose Performing quality clinical and translational research in juvenile dermatomyositis (JDM) is difficult due to the rarity of the disease. The Childhood Arthritis and Rheumatology Research Alliance (CARRA) initiated a multicenter observational cohort study to create a foundational clinical database for the major rheumatic diseases of childhood, including JDM. Initial data from the JDM cohort (prevalent and incident cases) enrolled in the first 7 months of this ongoing study are described here.
منابع مشابه
Diagnostic evaluation and medication usage in a cohort of subjects with juvenile dermatomyositis from the CARRAnet registry
Purpose Juvenile dermatomyositis (JDM) is a rare disease which has been difficult to evaluate objectively due to the low incidence of disease. The Childhood Arthritis and Rheumatology Research Alliance (CARRA) initiated a multicenter observational registry to create a clinical database for the major rheumatic diseases of childhood, including JDM. Initial data from the JDM cohort (prevalent and ...
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References 1. McCann LJ, Juggins AD, Maillard SM, Wedderburn LR, Davidson JE, Murray KJ, Pilkington CA: Juvenile Dermatomyositis Research Group. The Juvenile Dermatomyositis National Registry and Repository (UK and Ireland)–clinical characteristics of children recruited within the first 5 yr. Rheumatology 2006, 45(10):1255-1260. 2. Laskin BL, Choyke P, Keenan GF, Miller FW, Rider LG: Novel gast...
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Purpose The CARRAnet Registry, a multicenter registry of children with rheumatic diseases in the U.S. organized by the Childhood Arthritis Rheumatology and Research Alliance (CARRA), began enrollment in May 2010. Our aims were to describe the characteristics of children with JIA enrolled into the registry to date and to identify characteristics associated with the use of biologic disease-modify...
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