Health care professionals and intersex conditions.

نویسندگان

  • Joel Frader
  • Priscilla Alderson
  • Adrienne Asch
  • Cassandra Aspinall
  • Dena Davis
  • Alice Dreger
  • James Edwards
  • Ellen K Feder
  • Arthur Frank
  • Lisa Abelow Hedley
  • Eva Kittay
  • Jeffrey Marsh
  • Paul Steven Miller
  • Wendy Mouradian
  • Hilde Nelson
  • Erik Parens
چکیده

A s part of a larger project, a multidisciplinary group convened by The Hastings Center, Garrison, NY, met to consider medical, psychosocial, and ethical issues associated with the care of children born with atypical genitalia or later found to have other conditions now commonly grouped together as “intersex.” These children may have congenital adrenal hyperplasia, gonadal dysgenesis, hypospadias, partial or complete androgen insensitivity syndrome, etc. This commentary reflects the deliberations of the group, which concluded that none of the appearance-altering surgeries need to be performed quickly; families with children with intersex conditions require multidisciplinary care; children with intersex conditions deserve to know the truth about their bodies; families and health care professionals will benefit from rigorous longitudinal studies; and health care professionals need additional training about intersex conditions and sexual health generally.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

Response to the Council of Europe Human Rights Commissioner's Issue Paper on Human Rights and Intersex People.

Intersex/disorders of sex development advocacy groups and associated health care professionals question the legitimacy of the Council of Europe issue paper, express their worries about its potentially harmful consequences, and urge the Council of Europe to consult more widely with relevant stakeholders.

متن کامل

Adult genital surgery for intersex: a solution to what problem?

The desirability of routine genital surgery for infants with ambiguous genitalia is increasingly debated. But there is less discussion about intersex adults who choose genital surgery, despite evidence suggesting that the results are often unsatisfactory. This study reports on how six women with intersex conditions decided to have feminizing genital surgery and how they evaluated the outcomes. ...

متن کامل

‘They will be afraid to touch you’: LGBTI people and sex workers' experiences of accessing healthcare in Zimbabwe—an in-depth qualitative study

OBJECTIVES To examine experiences of key populations (lesbian, gay, bisexual, trans and intersex (LGBTI) people, men who have sex with men (MSM) and sex workers) in Zimbabwe regarding access to, and experiences of, healthcare. DESIGN Qualitative study using in-depth interviews and focus groups, with thematic analysis. PARTICIPANTS Sixty individuals from key populations in Zimbabwe. SETTIN...

متن کامل

Long-term adverse outcomes from neonatal circumcision reported in a survey of 1,008 men: an overview of health and human rights implications*

Amid growing bioethical and human rights concerns over nontherapeutic infant male circumcision, calls have been made to investigate long-term impacts on the men these infants eventually become. The present inquiry attempts to identify factors contributing to concerns of men claiming dissatisfaction with or ascribing harm from neonatal circumcision. This large sample size survey involved an onli...

متن کامل

Mixed-method research for child outcomes in intersex conditions.

Intersex encompasses a range of inborn errors of metabolism and dysmorphisms, having in common anomalous genitalia. The neonatal diagnosis may be unclear but genital atypia is not. Reconstructive surgery has been the standard of care for more than four decades. Although the conditions are ageless, selfdescriptions of long-term effects are rare, as are the anomalies themselves. For the purposes ...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:
  • Archives of pediatrics & adolescent medicine

دوره 158 5  شماره 

صفحات  -

تاریخ انتشار 2004