Well-being and sexual function outcomes in women with vaginal agenesis.

OBJECTIVE To assess long-term quality of life and sexual satisfaction outcomes of women treated for vaginal agenesis. DESIGN An audit project using questionnaires to assess quality of life (World Health Organization Quality of Life Bref [WHOQoL-Bref]) and sexual satisfaction (Golombok Rust Inventory of Sexual Satisfaction [GRISS]). SETTING Gynecology Department of Royal Children's Hospital. PATIENT(S) Women with vaginal agenesis. INTERVENTION(S) Medical data were extracted from notes. Women were contacted at their review consultation or were offered the opportunity for review and participation in the audit. MAIN OUTCOME MEASURE(S) WHOQoL-Bref and GRISS were measured. Correlation with medical details and treatment method was undertaken. RESULT(S) Age range was 16-71 years (median, 23 years). WHOQoL-Bref (n=28) scores (mean±SD, 4.2±0.8), were similar to the mean Australian population score. The GRISS questionnaire (n=20) revealed that 75% of women had overall satisfactory scores. WHOQoL scores had a high correlation with GRISS scores. Time since diagnosis correlated to GRISS scores with 12 of 13 diagnosed>5 years earlier having satisfactory results. Women without a hymen had more problems with vaginismus. CONCLUSION(S) General outcomes are good for these women, although vaginismus was an issue. There was a correlation between lower health satisfaction scores, feeling less feminine and feeling down, but not GRISS.