Transition practice for primary immunodeficiency diseases in Southeast Asia: a regional survey
نویسندگان
چکیده
Introduction With increased diagnostic capabilities and treatment modalities in the field of primary immunodeficiencies (PID), many pediatric patients survive beyond childhood experience a change care to adult-oriented healthcare system. Unfortunately, transition pathways for PID are less clearly defined, resulting deterioration quality adulthood. Hence, this is first regional study address clinicians’ opinions on practices challenges 7 Southeast Asia (SEA) countries. Methods We adopted cross-sectional design through an online survey platform enquire from expert representatives SEA Results Regionally, 3 out countries reported having no practice care. Among cited were reluctant adaptation by caregivers unfamiliarized adult systems, inadequate ratio immunologists lack facilities transfer. Discussion conclusion Our provides evidence advocate policy makers importance standardized integration towards betterment transiting into
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ژورنال
عنوان ژورنال: Frontiers in Immunology
سال: 2023
ISSN: ['1664-3224']
DOI: https://doi.org/10.3389/fimmu.2023.1209315