Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research
نویسندگان
چکیده
منابع مشابه
Researcher and institutional review board chair perspectives on incidental findings in genomic research.
AIMS Genomic research can produce findings unrelated to a study's aims. The purpose of this study was to examine researcher and Institutional Review Board (IRB) chair perspectives on genomic incidental findings (GIFs). METHODS Nineteen genomic researchers and 34 IRB chairs from 42 institutions participated in semi-structured telephone interviews. Researchers and chairs described GIFs within t...
متن کاملDiscovery and disclosure of incidental findings in neuroimaging research.
PURPOSE To examine different protocols for handling incidental findings on brain research MRIs, and provide a platform for establishing formal discussions of related ethical and policy issues. MATERIALS AND METHODS Corresponding authors identified from a database of peer-reviewed publications in 1991-2002 involving functional MRI (fMRI), alone or in combination with other imaging modalities, ...
متن کاملFunding considerations for the disclosure of genetic incidental findings in biobank research
The use of biobanks in biomedical research has grown considerably in recent years. As a result of the increasing analysis of tissue samples stored in biobanks, there has also been an increase in the probability of discovering-in addition to the research target-incidental findings (IF). We identified 23 laws, policies and guidelines from international, regional and national organizations that pr...
متن کاملActing on incidental findings in research imaging.
J MWardlaw professor of applied neuroimaging and honorary consultant neuroradiologist, H Davies research ethics adviser , T C Booth consultant neuroradiologist , G Laurie professor of medical jurisprudence, A Compston professor of neurology, C Freeman professor of psychiatry and clinical lead for accreditation , M O Leach professor of physics as applied to medicine , A D Waldman consultant neur...
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ژورنال
عنوان ژورنال: Journal of Empirical Research on Human Research Ethics
سال: 2010
ISSN: 1556-2646,1556-2654
DOI: 10.1525/jer.2010.5.3.31