Quality of life in patients with cystic fibrosis and their parents: what is important besides disease severity?
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منابع مشابه
Original articles Quality of life in patients with cystic fibrosis and their parents: what is important besides disease severity?
Background—Cystic fibrosis is the most common inherited disease with a fatal outcome in industrialised nations. With the improvement in life expectancy, supporting patients and their families in adapting to life with this chronic progressive disease has become increasingly important. The aim of the present study was to investigate the relationship between health related quality of life (HRQOL) ...
متن کاملQuality of life in patients with cystic fibrosis and their parents: what is important besides disease severity?
BACKGROUND Cystic fibrosis is the most common inherited disease with a fatal outcome in industrialised nations. With the improvement in life expectancy, supporting patients and their families in adapting to life with this chronic progressive disease has become increasingly important. The aim of the present study was to investigate the relationship between health related quality of life (HRQOL) ...
متن کاملQuality of Life in Psoriasis Patients and Its Correlation with Disease Severity
Background & Objective: Psoriasis is a chronic and relapsing disease with a prevalence of 2%. Since it is a chronic and non-fatal skin disease, its impact on quality of life in patients is underestimated compared to other diseases. This study points out to the importance of the quality of life in these patients and their correlation with disease severity. Materials & Methods: Quality of life...
متن کاملPerception of disease severity in adult patients with cystic fibrosis.
OBJECTIVE To evaluate the perception of disease severity in patients with cystic fibrosis (CF), investigating its relationship with clinical score, radiographic score, respiratory function tests, adherence to treatment and perception of self-care practices. METHODS Prospective, cross-sectional study involving CF patients treated in a program for adults with CF. The perception of disease sever...
متن کاملQuality of life in patients with cystic fibrosis depending on the severity of the disease and method of its treatment.
INTRODUCTION Quality of life is a measure not only of disease severity and its functional impact (physical, psychological, and social functioning) but also the efficacy of novel therapies. The aim of this study was to analyze the quality of life in cystic fibrosis patients depending on the severity of the disease and methods of its treatment. MATERIAL/METHODS The study included groups of cyst...
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ژورنال
عنوان ژورنال: Thorax
سال: 1998
ISSN: 0040-6376
DOI: 10.1136/thx.53.9.727