QLTI-14. PEDIATRIC CENTRAL NERVOUS SYSTEM TUMOR SURVIVOR AND CAREGIVER EXPERIENCES WITH MULTIDISCIPLINARY TELEMEDICINE

Abstract Central nervous system (CNS) tumors are the second most common pediatric cancer; survivors develop chronic medical conditions and complex care needs. While telemedicine is accelerating, its effectiveness has not been assessed in CNS tumor survivors. We evaluated experiences of those seen through our Pediatric Neuro-Oncology Survivorship Clinic at Dana-Farber/ Boston Children’s Cancer Blood Disorder Center. Patients caregivers who had a multi-disciplinary survivorship appointment from January 2021 March 2022 were invited to participate an anonymous survey which included questions on demographics, travel, equipment, with telehealth, preferences for telehealth utilization. Thirty-three adult 41 participated study (45% response rate). The majority respondents agreed or strongly that visits started time (97%, Nf65), scheduling was convenient Nf59), clinicians explained things easy-to-understand way listened carefully addressed concerns (93%, Nf56), spent enough them (95%, Nf56). However, only 58% (Nf35) they would like continue 48% (Nf32) as effective office visits. In univariable analysis, reported better regards travel (82%, Nf60), convenience (68%, Nf50), wait (70%, ease (56%, Nf40), while personal connection (58%, Nf41). Survivors more likely than prefer (72% vs 46%, p=0.027). difficulties using (15%, Nf11) asking normally ask clinic (19%, Nf14). may improve efficiency accessibility survivors, initiatives necessary optimize patient satisfaction.