Psychiatric genetics researchers' views on offering return of results to individual participants
نویسندگان
چکیده
منابع مشابه
Consent revisited: the impact of return of results on participants' views and expectations about trial participation
BACKGROUND Increasingly, the sharing of study results with participants is advocated as an element of good research practice. Yet little is known about how receiving the results of trials may impact on participants' perceptions of their original decision to consent. OBJECTIVE We explored participants' views of their decision to consent to a clinical trial after they received results showing a...
متن کاملDisclosing individual genetic results to research participants.
Investigators and institutional review boards should integrate plans about the appropriate disclosure of individual genetic results when designing research studies. The ethical principles of beneficence, respect, reciprocity, and justice provide justification for routinely offering certain results to research participants. We propose a result-evaluation approach that assesses the expected infor...
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The disclosure of individual genetic research results to study participants continues to be the subject of vigorous debate, centered primarily on the nature of the results. We suggest that research context, which is foreseeable when a study is designed, is a vital consideration that has not been sufficiently incorporated into the discussion. Adapting an ancillary care framework to explore what ...
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This article may be used for research, teaching, and private study purposes. Any substantial or systematic reproduction, redistribution, reselling, loan, sub-licensing, systematic supply, or distribution in any form to anyone is expressly forbidden. The publisher does not give any warranty express or implied or make any representation that the contents will be complete or accurate or up to date...
متن کاملUndesirable implications of disclosing individual genetic results to research participants.
Ravitsky and Wilfond (2006) correctly highlight the need for uniform guidelines to assist investigators and institutional review boards (IRBs) in determining whether to disclose individual genetic results to research participants. However, their results-evaluation framework, like other proposals that call for the disclosure of individual results to research participants (Partridge and Winer 200...
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ژورنال
عنوان ژورنال: American Journal of Medical Genetics Part B: Neuropsychiatric Genetics
سال: 2018
ISSN: 1552-4841,1552-485X
DOI: 10.1002/ajmg.b.32682