Protecting Personal Data in Epidemiological Research: DataSHIELD and UK Law

Protecting personal data in epidemiological research: DataSHIELD and UK law.

BACKGROUND Data from individual collections, such as biobanks and cohort studies, are now being shared in order to create combined datasets which can be queried to ask complex scientific questions. But this sharing must be done with due regard for data protection principles. DataSHIELD is a new technology that queries nonaggregated, individual-level data in situ but returns query data in an ano...

Protecting Personal Data in Camera Surveillance Practices

This paper explores in which ways privacy (in particular, data protection principles) comes to the fore in the day-to-day operation of a public video surveillance system. Starting from current European legal perspectives on data protection, and building on an empirical case study, the meanings and management of privacy in the practice of Closed-Circuit Television (CCTV) will be discussed in ord...

Certificates of Confidentiality: Protecting Human Subject Research Data in Law and Practice.

The federal Certificate of Confidentiality plays an important role in research on sensitive topics by authorizing researchers to refuse to disclose identifiable research data in response to subpoenas in any legal setting. However, there is little known about how effective Certificates are in practice. This article draws on our legal and empirical research on this topic to fill this information ...

Protecting Confidentiality in Canadian Research Data Centres

Obstacles to conducting epidemiological research in the UK general population.

http://bmj.com/cgi/content/full/329/7460/277 Updated information and services can be found at: These include: References http://bmj.com/cgi/content/full/329/7460/277#otherarticles 11 online articles that cite this article can be accessed at: Rapid responses http://bmj.com/cgi/eletter-submit/329/7460/277 You can respond to this article at: http://bmj.com/cgi/content/full/329/7460/277#responses f...