PatientsLikeMe: ALS patients sharing experiences and personal health information online
نویسندگان
چکیده
منابع مشابه
Sharing Personal Health Information: Personalization versus Privacy
Personal health information (PHI) is increasingly becoming a critical component of personalized healthcare. However, investment in PHI capabilities may be severely undermined if consumers are unwilling to share PHI. While consumers are concerned about potential compromise of PHI, they also value the personalization benefits of PHI use. In light of the limited understanding of this tension, this...
متن کاملSharing Health Data for Better Outcomes on PatientsLikeMe
BACKGROUND PatientsLikeMe is an online quantitative personal research platform for patients with life-changing illnesses to share their experience using patient-reported outcomes, find other patients like them matched on demographic and clinical characteristics, and learn from the aggregated data reports of others to improve their outcomes. The goal of the website is to help patients answer the...
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Background and Aim: The online social networks as new and widespread sources of information have been able to facilitate the accessibility of people to health information. The aim of this study was to determine the use of online social networks and their role in sharing health information among pregnant women. Materials and Methods: This descriptive-analytical study was conducted in Kerman in ...
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Enhancing Health Information-Gathering Experiences in Online Health Communities
متن کاملAttitudes to sharing personal health information in living kidney donation.
BACKGROUND AND OBJECTIVES In living kidney donation, transplant professionals consider the rights of a living kidney donor and recipient to keep their personal health information confidential and the need to disclose this information to the other for informed consent. In incompatible kidney exchange, personal health information from multiple living donors and recipients may affect decision maki...
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ژورنال
عنوان ژورنال: Proceedings of the American Society for Information Science and Technology
سال: 2009
ISSN: 0044-7870
DOI: 10.1002/meet.2009.1450460335