Patient reported outcomes and patient empowerment in clinical genetics services
نویسندگان
چکیده
منابع مشابه
Patient reported outcomes and patient empowerment in clinical genetics services.
Evaluation of clinical genetics services (CGS), including genetic counseling and genetic testing, has been problematic. Patient mortality and morbidity are unlikely to be directly improved by interventions offered in CGS. Patient-reported outcomes (PROs) are not routinely measured in CGS evaluation, but this may change as patient-reported outcome measures (PROMs) become a key part of how health...
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ژورنال
عنوان ژورنال: Clinical Genetics
سال: 2014
ISSN: 0009-9163,1399-0004
DOI: 10.1111/cge.12520