Patient engagement to prioritise CF research: Inclusive or selective?

Need to define patient engagement in research.

HIV research: enhancing engagement to improve ethics

Active patient engagement in research.

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Crowdsourcing and patient engagement in research.

Emerging Guidelines for Patient Engagement in Research.

There is growing recognition that involving patients in the development of new patient-reported outcome measures helps ensure that the outcomes that matter most to people living with health conditions are captured. Here, we describe and discuss different experiences of integrating patients as full patient research partners (PRPs) in outcomes research from multiple perspectives (e.g., researcher...