Patient data ownership: who owns your health?

Who Owns Your DNA?

Stanford Genetics Professor Michael Snyder’s book, Genomics & Personalized Medicine: What Everyone Needs to Know, is a work to be enjoyed on multiple levels. Designed for a broad audience, the book delivers a great deal of detail for the scientifically savvy while still providing a generalized overview for the yet-to-be-initiated. Although brief, the book is timely, having followed closely on t...

Who owns your DNA? who will own It?

Q uietly and doggedly, a race is going on in laboratories around the world—the race to determine who will own human heritage. calls the US and British sequencing teams chasing the full sequence of the human genome at breakneck speed. On the other side is the private sector, most notably Craig Venter, PhD, chief scientific officer of Celera, a genomics company. Each group has the same mission: t...

You versus users - who owns your roadmap? (keynote)

Requirement Engineering can become complex when the number of users who submit requirements is large. In the world of online Software as a Service businesses, the number of users can be massive – often in the millions. In the case of SurveyMonkey, the world’s largest survey company, it can be in the tens of millions. In a world with increasing demands and where users have a louder voice than ev...

Who Owns Intelligence?

Who Owns the Data? Open Data for Healthcare

Research on large shared medical datasets and data-driven research are gaining fast momentum and provide major opportunities for improving health systems as well as individual care. Such open data can shed light on the causes of disease and effects of treatment, including adverse reactions side-effects of treatments, while also facilitating analyses tailored to an individual's characteristics, ...