P13.01.A Challenges and Solutions for Establishing a CNS Tumor Registry in Africa

Abstract Background CNS tumor registries (CTR) has evolved to a key tool for data collection, evaluation of diagnostic and treatment patients suffering from tumors the central nervous system (tCNS) in U.S, but CTR Africa does not yet exist. In comparison high-income countries (HIC), many low- middle-income (LMIC) do have national or registries. Furthermore, appropriate steps like MRI pathological analysis are still scarce LMIC. Improving availability resource- limited regions could allow better understanding some specificities tCNS including incidence, prevalence, mortality morbidity. However, CTR, tend be costly thus difficult implement LMIC setting. Material Methods A review current body literature on was conducted using multiple scientific online bases. Search terms included ,,CNS registry,” “developing countries,” “low middle income,” other related as starting point future initiatives. Results It found that more than 1,3 billion people residing lack access continental CTR. There is no well established standards reporting tCNS. Most underreported Africa. The exact burden unknown. Although successful, long-term, initiatives international neurological neurosurgical collaborations published, any similarly Central Brain Tumor Registry United States (CBTRUS) lacking. Conclusion: Disparities care been published solutions under investigations. Partnerships between centers HIC making progress understand disease create context-specific practice Collaboration World Health Organisation, control Africa, departments neuroscience CBTRUS interested groups meaningful strategical initiated establishment lead comprehension facilitate prevention, diagnostic, research.