P059 First results of Turkish National Cystic Fibrosis Registry
نویسندگان
چکیده
منابع مشابه
Cystic fibrosis mortality: registry data of cystic fibrosis.
BACKGROUND The Cystic Fibrosis Foundation has been collecting mortality and other data on cystic fibrosis patients from over 100 U.S. clinical centers since 1966, and publishes annual reports of the data. Cystic fibrosis is an important autosomal recessive genetic disease, affecting multiple body systems, with disability and early mortality as very common complications. RESULTS Observed data ...
متن کاملCystic fibrosis in Australia, 2009: results from a data registry.
OBJECTIVES To describe the demographics, clinical features and outcomes among people with cystic fibrosis (CF) in Australia and to estimate incidence of the disease. DESIGN AND SETTING Cross-sectional analysis using data from the Australian Cystic Fibrosis Data Registry for 2009. MAIN OUTCOME MEASURES Numbers of diagnoses, pulmonary and anthropometric measurements, microbiological culture r...
متن کاملNational Joint Registry of Iran
Joint replacement is currently on the rise with a high community burden. A registry was designed to evaluate the costs,possible complications, and rate of revisions as well as finding the most effective techniques, risk factors associatedwith poor results, indications for revision surgeries, and also demographic evaluation of patients undergoing jointreplacement surgery in Iran. Level of eviden...
متن کاملAllergic bronchopulmonary aspergillosis in cystic fibrosis. A European epidemiological study. Epidemiologic Registry of Cystic Fibrosis.
Allergic bronchopulmonary aspergillosis (ABPA) is a disease resulting from a hypersensitivity response to Aspergillus fumigatus, although the pathogenesis of the disease is unknown and its prevalence in cystic fibrosis (CF) is still poorly defined. Data from the Epidemiologic Registry of Cystic Fibrosis (ERCF) on 12,447 CF patients gathered from 224 CF centres in nine European countries were an...
متن کاملIranian Joint Registry(Iranian National Hip and Knee Arthroplasty Registry)
Periodic evaluation and monitoring the health and economic outcome of joint replacement surgery is a common and popular process under the territory of joint registries in many countries. In this article we introduce the methodology used for the foundation of the National Iranian Joint Registry (IJR) with a joint collaboration of the Social Security Organization (SSO) and academic research de...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: Journal of Cystic Fibrosis
سال: 2019
ISSN: 1569-1993
DOI: 10.1016/s1569-1993(19)30353-4