Huntington disease: families’ experiences of healthcare services
نویسندگان
چکیده
منابع مشابه
Family caregivers' experiences with healthcare services - a case of Huntington disease.
OBJECTIVES Despite a growing interest in the health and psychosocial consequences of caring for a person with Huntington's disease (pHD), little is still known about family caregivers of such patients in Poland. At the same time, while researchers focus on the needs, quality of life and caregiving burden, they frequently omit caregivers'experiences with healthcare services. This paper aims to r...
متن کاملThe emotional experiences of family carers in Huntington disease.
AIM This paper is a report of a study conducted to examine the emotional experience of caregiving by family carers of people with Huntington disease and to describe strategies they used to deal with that experience. BACKGROUND Huntington disease, commonly diagnosed in young to middle adulthood, is an inherited single gene disorder involving loss of cognitive, motor and neuropsychiatric functi...
متن کاملFamily caregivers’ experiences with healthcare services – a case of Huntington’s disease
Introduction. Despite a growing interest in the health and psychosocial consequences of caring for a person with Huntington’s disease (pHD), little is still known about family caregivers of such patients in Poland. At the same time, while researchers focus on the needs, quality of life and caregiving burden, they frequently omit caregivers’ experiences with healthcare services. Aim. This paper ...
متن کاملDiagnosis of Huntington disease.
BACKGROUND Huntington disease (HD) is a rare, progressive, and fatal autosomal dominant neurodegenerative disorder, typically of adult onset. METHODS We reviewed the literature concerning the molecular diagnosis of HD. RESULTS The discovery of the genetic etiology of HD, a trinucleotide expansion mutation on chromosome 4p, has led to the development of increasingly reliable and valid diagno...
متن کاملTreatment of Huntington's disease Using Medieval Iranian Practice
Huntington's disease (HD) is thought to be due to genetically-programmed degeneration of neurons in certain areas of the brain. This degeneration causes uncontrolled movements, loss of intellectual faculties, and emotional disturbances. It is along time since the disease started tormenting human beings, and to date, conventional medications have failed to slow down the progression of HD. ...
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ژورنال
عنوان ژورنال: Journal of Advanced Nursing
سال: 2010
ISSN: 0309-2402,1365-2648
DOI: 10.1111/j.1365-2648.2009.05217.x