Hereditary angioedema: Patient journey approach in Mexico.

Objective: To understand the patient’s journey with HAE from symptom initiation to diagnosis, treatment allocation, follow-up, and impact of disease on their quality life in Mexico. Methods: A survey was administered patients HAE. Participants completed a questionnaire covering five domains: patient journey; effects productivity, school performance daily activities; life; anxiety depression. Responses were analyzed using descriptive statistics. Results: total 17 surveys (15 women 2 men, age range: 23-67 years). Type I most common (71%), normal C1 inhibitor 12% 18% did not know type. The average evolution 13.7 years time diagnosis 20 years. 59% knew one or two treatments available, 3 aware 4 more, any treatments. 53% had job, referred severely anxious state, 41% depressed all some social due Conclusions: There is need reinforce knowledge general practitioners promote an earlier awareness rare diseases among population removal barriers treatment.