Grandparents Raising Children with Disabilities

Caregiver burden and sibling relationships in families raising children with disabilities and typically developing children.

Using family systems theory as a theoretical framework, we investigated direct and indirect associations between type of disability, caregiver burden, and sibling relationships with structural equation modeling. We recruited 172 families raising typically developing children or a child with a disability. Participants volunteered at meetings and workshops for families of children with disabiliti...

Grandparents raising grandchildren: stressors, social support, and health outcomes.

The major purpose of this study was to identify predictors of grandparent caregiver health status. Additional purposes were to describe the physical and emotional health of grandparent caregivers and the perceived benefits of support group attendance. A convenience sample of 42 grandparents was recruited from support groups. Data were collected through telephone interviews. Grandparents who had...

A profile of grandparents raising grandchildren in the United States.

This article examines the prevalence of grandparent caregiving in the U.S. and presents a national profile of grandparent caregivers based on current data from the national Survey of Families and Households. More than one in ten grandparents are found to have cared for a grandchild for at least 6 months, with most of these having engaged in a far longer-term commitment. Although custodial grand...

Material Hardship in US Families Raising Children with Disabilities: Research Summary & Policy Implications

Overview: We compared experiences of material hardship, including food insecurity, housing instability, and health care access, in families raising children with and without disabilities. Families of children with disabilities experienced significantly greater hardship than families with nondisabled children. As family income rose above the federal poverty level, hardship declined sharply for f...

Interviewing Children with Disabilities