Governance mechanisms for sharing of health data: An approach towards selecting attributes for complex discrete choice experiment studies

Discrete Choice Experiment (DCE) is a well-established technique to elicit individual preferences, but it has rarely been used governance preferences for health data sharing. The aim of this article was describe the process identifying attributes DCE study aiming citizens in Sweden, Iceland and UK mechanisms digitally sharing different kinds contexts. A three-step approach utilised inform attribute level selection: 1) Attribute identification, 2) development 3) refinement. First, we developed an initial set potential from literature review workshop with experts. To further develop attributes, focus group discussions (n = 13), ranking exercises among participants 48) expert interviews 18) were performed. Thereafter, refined using discussion experts as well cognitive 11). results led selection seven development: purpose use, type information, 4) consent, 5) new user, 6) collector 7) oversight Differences found between countries regarding order top three attributes. outlined participants’ conceptualisation chosen what learned our phase. This demonstrates (multi-country) involving stages: can contribute improve ethical aspects good practice phase studies. Specifically, digital world, where people's are shared multiple purposes.