Family Caregiver Participation in Palliative Care Research: Challenging the Myth
نویسندگان
چکیده
منابع مشابه
Enhancing caregiver outcomes in palliative care.
BACKGROUND Families are increasingly replacing skilled health care workers in the delivery of unfamiliar complex care to their relatives with cancer, despite other obligations and responsibilities that characterize their lives. METHODS The authors review the needs of cancer caregivers and describe intervention strategies not only presented in the literature, but also implemented in their own ...
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This study sought to identify and analyze the significance of the process of dying for family caregivers of elderly patients in palliative care. It involved qualitative research with the use of interviews. The data were scrutinized by content analysis. The presence of chronic diseases that lead the elderly patient to require palliative care imposes a series of complex and ambivalent feelings on...
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In this conceptual piece, we survey the progress of palliative care communication and reflect back on a chapter we wrote a decade ago, which featured the communication concept of mutual pretense, first described by Glaser and Strauss (1965). This work will include an update on family caregivers and their role in cancer caregiving as well as a review of current palliative care communication curr...
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Research in family caregiving recently has become more challenging because of the strict protection of privacy mandated in the Health Insurance Portability and Accountability Act (HIPAA) of 1996. We ask when should Institutional Review Boards (IRBs) follow HIPAA rules to the letter and when might they use the waiver option? What is the appropriate balance between the goals of protecting the pri...
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Palliative care, defined broadly as a holistic approach to care for patients with progressive and advanced disease with limited prospects for long‐term survival (World Health Organization, 2008), confronts a number of formidable policy obstacles and challenges to its development in the U.S. Included among them are inadequate access, fragmented delivery systems, inadequate financing mechanisms, ...
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ژورنال
عنوان ژورنال: Journal of Pain and Symptom Management
سال: 2017
ISSN: 0885-3924
DOI: 10.1016/j.jpainsymman.2016.12.327