EOLP-05. POSTMORTEM TISSUE DONATION: GIVING FAMILIES THE ABILITY TO CHOOSE
نویسندگان
چکیده
Abstract To our knowledge, Gift From a Child (GFAC) is the only dedicated consortium providing autopsy resources for children with brain tumors. Using parental data and experience of being multi-institutional post mortem CNS tumor collection program, GFAC seeks to inform medical professionals need approach families about post-mortem donation demonstrate how barriers can be overcome. Much like one that occurred organ donation, cultural shift needed goal offer every family option donate. Collected survey shows, 98% who donated were satisfied their decision, compared 20% did not donate decision. Most want provided opportunity chooseto donate, citing desire advance research help future families. For donated, over 71% initiated conversation clinician. Among those 58% reported they had been asked. The healthcare team time both groups. Without initiated, many remain unaware necessity impact on advancing research. timing structure brought up impacts if proceed donating, however, shows withholding this frequently more distressing Parent interviews indicate majority are most open once it’s evident child will survive during transition hospice care. Presentation as driver research, helping next child, key step in family’s grieving process positively correlate decision
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ژورنال
عنوان ژورنال: Neuro-oncology
سال: 2022
ISSN: ['1523-5866', '1522-8517']
DOI: https://doi.org/10.1093/neuonc/noac209.410