Compounded medication for patients with rare diseases

Compounded medication for patients with rare diseases

BACKGROUND When there is no authorized on- or in absence even no off-label treatment for patients with rare diseases, pharmacists have to compound medicinal products to meet the patients special needs. However it is important that there is evidence in the medical and/or pharmaceutical literature for such compounded medications. POSITION STATEMENT Pharmaceutical compounding must be performed i...

[Care for patients with rare diseases].

A rare disease usually concerns only a handful of patients, but all patients with a rare disease combined represent a significant health burden. Due to limited knowledge and the absence of treatment guidelines, patients with rare diseases usually experience delayed diagnosis and suboptimal treatment. Historically, rare diseases have never been considered a major health problem. However, rare di...

Hypothyroidism: optimizing medication with slow-release compounded thyroid replacement.

Integrated Transitions of Care for Patients With Rare Pulmonary Diseases.

PURPOSE/OBJECTIVES Many continuing education (CE) resources are available to support case management professionals in developing competencies in transitions of care (TOC) that apply generally across disease areas. However, CE programs and tools are lacking for advanced TOC competencies in specific disease areas. This article describes 2 projects in which leading TOC, case management, and CE org...

Factors affecting medication adherence in Lebanese patients with chronic diseases

BACKGROUND Non-adherence to prescribed medications represents an obstacle toward achieving treatment goals. This problem is more pronounced in patients with chronic illness. OBJECTIVE To identify the extent of adherence in Lebanese outpatients with chronic diseases, and to suggest possible predictors of non-adherence in this population. The secondary objective was to assess if medication adhe...