Are the epilepsy representative groups truly representative?
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چکیده
منابع مشابه
Are the epilepsy representative groups truly representative?
This is a timely piece of work given the emphasis being placed on the patient in the process of health policy formulation and service design and commissioning. Duncan et al. therefore ask a very relevant and important question about the validation of patient and service user involvement and in particular the qualification of representative groups that purport to voice the views of people with a...
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1 The first author Munmun De Choudhury is a PhD student in Computer Science at Arizona State University, Tempe. She has played the primary role in this work, including the theoretical modeling of the framework as well as data collection and the experiments. Her advisor is Dr Hari Sundaram. This work is supported by a grant from Avaya Labs, New Jersey. Her collaborators (coauthors in this paper)...
متن کاملEpilepsy health consumer groups and charities; How representative of patients are they? The results of a pilot study
PURPOSE In the United Kingdom all health care providers are encouraged to consult with user groups. The submissions of charities and patient advocacy groups to NICE and SIGN are considered reflective of the patient groups they purport to represent, yet little is known about how representative they are. This pilot study was designed to ascertain how many patients attending a hospital based epile...
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Multidimensional projection-based visualization methods typically rely on clustering and attribute selection mechanisms to enable visual analysis of multidimensional data. Clustering is often employed to group similar instances according to their distance in the visual space. However, considering only distances in the visual space may be misleading due to projection errors as well as the lack o...
متن کاملEpilepsy health consumer groups and charities; How representative of patients are they? (Grinton M., et al. Seizure J. (2012))
Epilepsy Society would like to respond to the above article published in Seizure earlier this year. Through our tertiary assessment and treatment centre, residential care and supported living services, as well as a long standing association with the National Hospital of Neurology, Epilepsy Society works directly with thousands of people with epilepsy each year. We are also doing more than ever ...
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ژورنال
عنوان ژورنال: Seizure
سال: 2013
ISSN: 1059-1311
DOI: 10.1016/j.seizure.2013.04.013