a bstra ct   background: although today parents’ participation in taking care of hospitalized children is considered as an indispensable principle, it is still among the concepts with no consensus about. the main objective of this study is to define parents’ participation in taking care of hospitalized children.   materials and methods: the concept of “parents’ participation in taking care of h...

BACKGROUND Although today parents' participation in taking care of hospitalized children is considered as an indispensable principle, it is still among the concepts with no consensus about. The main objective of this study is to define parents' participation in taking care of hospitalized children. MATERIALS AND METHODS The concept of "parents' participation in taking care of hospitalized chi...

BACKGROUND The traditional paternalistic approach to medical decision-making is moving towards a climate of greater patient and/or surrogate involvement. Despite this, there is considerable debate regarding patient preferences for participation in medical decision-making and its effect on patient satisfaction and outcome. This study was designed to examine parents' preferences for participation...

OBJECTIVE To obtain parents' perspectives on children's participation and environment to inform the development of new measures. DESIGN Descriptive design using qualitative methods with focus groups and semistructured interviews. SETTING Focus groups and interviews with parents of children with disabilities were held on campus, in the home, and at community agencies; interviews with parents...

BACKGROUND Pediatric rehabilitation considers Family-centered service (FCS) as a way to increase participation of children with a physical disability in daily life. An important principal is that parents greatly contribute to their child's participation at school, at home, and in the community. However, it is unclear what kind of information is available from literature about what parents actua...

This evaluation assessed whether participation in Parents Anonymous mutual support groups was associated with child maltreatment prevention. Parents new to groups across the United States were interviewed at baseline, one month, and six months. Using standardized scales, all parents showed improvements in some child maltreatment outcomes, risk factors, and protective factors. Parents starting o...

Ensuring parents make an informed decision about their child's participation in a clinical trial is a challenge for practitioners as a parent's comprehension of a trial may differ from that intended by the practitioners responsible for recruitment. We explored what issues parents consider important when making a decision about participation in a paediatric clinical trial and their comprehension...