PURPOSE The purpose of this study was to explore the experiences of Korean mothers in parenting children with Hunter's syndrome, an X linked recessive genetically inherited disease usually affecting boys. METHODS Data were collected from 14 mothers having children with Hunter's syndrome, through two focus group interviews and individual in-depth interviews. Qualitative data from the field not...

The study investigated the relationship between coping strategies and psychological well-being among parents with Down syndrome children. The sample comprised of 120 parents (60 fathers, 60 mothers of diagnosed 60 children with Down syndrome) collected through purposive sampling. The study was an exploratory study and used co-relational research design. The study planned to investigate all poss...

OBJECTIVE To describe incidence of Down syndrome in Dubai, United Arab Emirates (UAE). SUBJECTS AND METHODS A total of 63,398 newborn babies in Dubai (24,250 UAE nationals and 39,148 non-UAE) during a 5-year period of 1999-2003 were routinely examined by experienced nurses, neonatologists, pediatricians and/or general practitioners for symptoms of Down syndrome. Those suspected with Down synd...

OBJECTIVE To identify the relationship between characteristics of the child with Down syndrome and the health of their mother. STUDY DESIGN Families with a child/young adult with Down syndrome (<25 years) provided information related to the health of the child, functioning and behavior, and the health and well-being of the mother (n = 250). RESULTS The mean physical health score of mothers ...

INTRODUCTION Cryptorchidism is a common and prevalent condition in patients with Down syndrome. Environmental factors, such as smoking, can be associated with malformations during fetal development. The study of the prevalence of cryptorchidism and its association with parental tobacco use in Down syndrome can contribute to alert health care professionals, patients and family members regarding ...

objectives: the present study aimed to investigate the relationship between religious coping and quality of life of mothers of children with hearing deficiency.  methods: in this study, 55 mothers of children with hearing deficiency referred to isfahan cochlear implant center, from june to august 2012, were selected through applying census method. the participants answered the questionnaires of...

Purpose: This research aimed to study the effect of 8 weeks core stability training on static&nbsp;balance of the children with Down syndrome. Methods: A total of 16 children with Down syndrome from rehabilitation center of Noor Abad&nbsp;City were selected and randomly divided into 2 groups of control (n=8) and experimental (n=8).&nbsp;At the pretest and posttest, subjects&rsquo; static balan...