نتایج جستجو برای: registry national
تعداد نتایج: 429571 فیلتر نتایج به سال:
AIM OF DATABASE The main aim of the Danish National Acute Leukemia Registry (DNLR) was to obtain information about the epidemiology of the hematologic cancers acute myeloid leukemia (AML), acute lymphoblastic leukemia (ALL), and myelodysplastic syndrome (MDS). STUDY POPULATION The registry was established in January 2000 by the Danish Acute Leukemia Group and has been expanded over the years....
AIM The Danish National Chronic Myeloid Neoplasia Registry (DCMR) is a population-based clinical quality database, introduced to evaluate diagnosis and treatment of patients with chronic myeloid malignancies. The aim is to monitor the clinical quality at the national, regional, and hospital departmental levels and serve as a platform for research. STUDY POPULATION The DCMR has nationwide cove...
AIM The Danish National Multiple Myeloma Registry (DMMR) is a population-based clinical quality database established in January 2005. The primary aim of the database is to ensure that diagnosis and treatment of plasma cell dyscrasia are of uniform quality throughout the country. Another aim is to support research. Patients are registered with their unique Danish personal identification number, ...
A myotrophic lateral sclerosis (ALS) is a progressive and often fatal neuromuscular disease. Most people die within 2–5 years of being diagnosed with ALS (Mitsumoto, Chad, & Pioro, 1998). Community concerns about perceived clusters of cases of ALS have challenged public health agencies to consider the possible contribution of environmental contaminants to the development of this disease. The ge...
Pulmonary hypertension (PH) is a condition that refers to a mean pulmonary artery pressure of at least 25 mmHg measured by right heart catheterisation at rest. PH is classified in five groups based on the underlying clinical condition [1]. Some of these conditions are orphan diseases and managed in designed tertiary PH centres with dedicated multidisciplinary teams. During the last decades grea...
Objective: To assess the use of IV recombinant tissue plasminogen activator (rt-PA) in a statewide hospitalbased stroke registry and to identify factors associated with its use among eligible patients. Methods: A modified stratified sampling scheme was used to obtain a representative sample of 16 hospitals. Prospective case ascertainment and data collection were used to identify all acute strok...
Patients and methods The Italian CAPS Registry started in 2004 and has currently enrolled 29 patients: 16 with Chronic Infantile Neurologic Cutaneous Articular Syndrome (CINCAs), 8 with Muckles Welles syndrome (MWS) and 5 with Familial Cold Urticaria (FCU). 16 patients were treated with Anakinra (IL-1 receptor antagonist) at 1 mg/kg/ day. The Child Health Questionnaire (CHQ-PF 50) was used to a...
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