BACKGROUND Recruiting large and representative samples of adolescent and young adult (AYA) cancer survivors is important for gaining accurate data regarding the prevalence of unmet needs in this population. This study aimed to describe recruitment rates for AYAs recruited through a cancer registry with particular focus on: active clinician consent protocols, reasons for clinicians not providing...

the registry of myocardial infarctions (mi registry) is a national registry in iran that collects and reports the data on myocardial infarctions. its main advantage is that it covers the whole country and is mandatory for hospitals to register the mi cases in it. then, the qualified individuals at the provincial and national levels can get intended reports and make appropriate decisions. such r...

designing a minimum data set for national cancer registry in iran     sadoughi f [1] , safdari r [2] *, meraji m [3] , ramzan ghorbani n [4] , ghazisaeedi m [5]     received: 9 jul , 2013 accepted: 21 sep , 2013     abstract   background & aims : due to the widespread increase of cancer diseases, cancer registries as foundations for a struggle plan against the disease have been established. the...

how to cite this article: ahmadabadi f. neurometabolic registry site in iran (leukodystrophies). iran j child neurol. autumn 2014;8;4(suppl.1):22. pls see pdf.

Information collected in a clinical study on a random sample of 99 patients with inoperable lung cancer, treated with radiotherapy, was compared to the staging information in the Maastricht cancer registry. Validity of sex (0% disagreements), date of birth (0%), histology (1% major disagreements) and treatment (1%) was high, but the validity of stage was lower: 12% major and 23% minor disagreem...

BACKGROUND Few prospective studies have examined cancer incidence among vegetarians. OBJECTIVE We report cancer incidence among vegetarians and nonvegetarians in the European Prospective Investigation into Cancer and Nutrition-Oxford (EPIC-Oxford) study. DESIGN This was a prospective study of 63,550 men and women recruited throughout the United Kingdom in the 1990s. Cancer incidence was fol...

The population of cancer survivors has grown steadily over the past several decades. Surviving cancer, however, is not synonymous with a life free of problems related to the disease and its treatment. In this paper we provide a brief overview of selected physical and psychosocial health problems prevalent among cancer survivors, namely pain, fatigue, psychological distress and work participatio...

Nieto and Coresh (1) are reviewing alternative methods for presenting adjusted survival curves. The proposed new method is a special case of the Ederer II method currently used at cancer registries worldwide. In addition, there are other frequently used methods for adjusting for deaths and censorings that are not mentioned. It is important to state the context in which any adjusted survival cur...

The Northern Ireland Cancer Registry was evaluated using a 5% sample of all cancers diagnosed histologically in 1983 as the standard for comparison. The overall registration rate was low. Two years following histological diagnosis only 63% of the cancers were registered and 19% of these were notified solely by the Registrar General's office. In a subgroup of patients who were known to have died...