Facilitating a smoother transition for adolescents with chronic health conditions from the child to the adult health care system has been a topic of numerous expert panels, conferences, and policy statements [1–7]. As stated in the original 1993 Society for Adolescent Medicine’s (SAM’s) position paper, “systemic inertia, fueled by insufficient information about transition options and outcomes, ...

The Medical Home Clinic for Special Needs Children (MHCL) at Arkansas Children's Hospital provides comprehensive care oversight for children with medical complexity (CMC). The objective of this study is to evaluate parent perceptions of health care delivery outcomes after 12 months of enrollment in the MHCL. This is a prospective cohort study of parents of MHCL patients, who completed surveys a...

BACKGROUND In order to plan and improve provision of comprehensive care in Huntington's disease (HD), it is critical to understand the gaps in healthcare and social support services provided to HD patients. Research has described utilization of healthcare services in HD in Europe, however, studies systematically examining needs for healthcare services and social support are lacking. This study ...

BACKGROUND What matters to people in their everyday experiences of living with asthma is influenced by a diverse range of personal, social, medical and environmental factors. Previous reviews of the asthma literature have largely focused on medical aspects of asthma or specific population groups with particular needs. OBJECTIVE To identify, describe and synthesize from the available qualitati...

Determining what obstacles diabetes specialist teams face when providing services for patients with diabetic ketoacidosis has not previously been determined on a national scale. Between May and November 2014 a survey of all 220 UK diabetes specialist teams was conducted to assess their ability to provide comprehensive care for adult patients presenting with ketoacidosis [1] (see Appendix S1). S...

OBJECTIVE This work evaluated nursing students' knowledge and attitudes toward individuals with Alzheimer's disease and dementia. METHODOLOGY This was a transversal, descriptive study carried out with a randomly selected group of nursing students (N = 122) from Bangalore, India, in 2013. The study used the Alzheimer's Disease Knowledge scale (30 questions with true-false options) and the Atti...

Stroke still causes high levels of human inability and suffering, and it is one of the main causes of death in developed countries, including Portugal. OBJECTIVE analyze the strategies of hospital discharge planning for these patients, increasing the knowledge related to hospitalhome transition, discharge planning processes and the main impact on the quality of life and functionality. METHO...