OBJECTIVE To examine the use of instruments which assess the functioning of individuals who parent an adolescent with chronic pain. The study will focus on examining the population in which measures were developed, content, length, psychometric evaluation, and published use with this specific chronic pain population. METHODS A systematic search of the literature identified 4,225 articles, gen...

The recent hidradenitis suppurativa (HS) Cochrane review identified outcome measure heterogeneity as an important issue to address when designing future HS trials. Our objective was to follow the Harmonising Outcome Measures for Eczema (HOME) roadmap, by performing a systematic review of HS outcome measure instruments to inform the development of an HS core outcome set. We performed a systemati...

The aim of this study was to evaluate the cross-cultural adaptation of the main quality of life instruments related to oral health. Studies on cross-cultural adaptation of oral health-related quality of life measures were searched for in LILACS and MEDLINE. Twenty-nine articles were analyzed, identifying distinct methods for cross-cultural adaptation of oral health-related quality of life measu...

conclusions although the two instruments were able to discriminate between various states, the values derived from these instruments were quite different. this distinction could have influenced the conclusions of an economic evaluation. further research is required to determine which instrument should be used in economic evaluations. results the mean and median eq-5d utility scores for the tota...

Brief self-report questionnaires that assess attenuated psychotic symptoms have the potential to screen many people who may benefit from clinical monitoring, further evaluation, or early intervention. The extent to which recently developed screening instruments demonstrate sound psychometric properties is an important issue toward the implementation of these measures in clinical practice. This ...

BACKGROUND Patient reported outcome measures (PROMs) have been introduced in studies to assess healthcare performance. The development of PROMs for primary care poses specific challenges, including a preference for generic measures that can be used across diseases, including early phases or mild conditions. This pilot study aimed to explore the potential usefulness of seven generic measures for...

STUDY OBJECTIVE To clarify concepts and methodological problems in existing multidimensional health status measures for children. DESIGN Thematic review of instruments found by computerised and manual searches, 1979-95. SUBJECTS Nine health status instruments. MAIN RESULTS Many instruments did not satisfy criteria of being child centered or family focussed; few had sufficient psychometric...

BACKGROUND Health services that affect quality of life (QoL) are increasingly evaluated using cost utility analyses (CUA). These commonly employ one of a small number of multiattribute utility instruments (MAUI) to assess the effects of the health service on utility. However, the MAUI differ significantly, and the choice of instrument may alter the outcome of an evaluation. AIMS The present a...

OBJECTIVE To review selected measures of stress and coping in pediatric populations. Stress and coping are presented within a risk and resiliency framework. METHODS The Society of Pediatric Psychology (SPP) surveyed the membership to identify the most frequently used assessment instruments. Twelve measures of coping and three measures of stress were reviewed. These instruments were evaluated ...

In this review we present an overview of quality of life (QOL) and QOL measures in neuromuscular disorders. We discuss the characteristics of QOL measures used in neuromuscular research, highlighting differences between generic versus disease-specific and global versus health-related QOL instruments. The phenomenon of response shift is reviewed. Commonly used QOL instruments are reviewed for am...