نتایج جستجو برای: registry national

تعداد نتایج: 429571  

2018
D. C. Eindhoven L. N. van Staveren J. A. van Erkelens D. E. Ikkersheim S. C. Cannegieter V. A. W. M. Umans A. Mosterd J. van Wijngaarden M. J. Schalij C. J. W. Borleffs

INTRODUCTION Since health insurance is compulsory in the Netherlands, the centrally registered medical claims data might pose a unique opportunity to evaluate quality of (cardiac) care on a national level without additional collection of data. However, validation of these claims data has not yet been assessed. DESIGN Retrospective cohort study. METHODS National claims data ('national regist...

Journal: :Morbidity and mortality weekly report. Surveillance summaries 2016
Paul Mehta Wendy Kaye Leah Bryan Theodore Larson Timothy Copeland Jennifer Wu Oleg Muravov Kevin Horton

PROBLEM/CONDITION Amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig's disease, is a progressive and fatal neuromuscular disease for which no cure or viable treatment has been identified. ALS, like most noncommunicable diseases, is not a nationally notifiable disease in the United States. The prevalence of ALS in the United States during 2010-2011 was estimated to be 3.9 cases pe...

Journal: :Twin research and human genetics : the official journal of the International Society for Twin Studies 2006
Patricia C Chulada Linda A Corey Vani Vannappagari Nedra S Whitehead Perry J Blackshear

Between 4 to 6 million twins exist in the US today who offer scientists a valuable potential resource for conducting behavioral and biomedical research. However, unlike many other countries, there is no national system in the US for identifying twins and eliciting their participation in these important research programs. Therefore, the National Institute of Environmental Health Sciences (NIEHS)...

Journal: :Arquivos brasileiros de cardiologia 2007
Cristiano O Cardoso Alexandre S de Quadros Luiz A Mattos Carlos A Gottschall Rogério E Sarmento-Leite José A Marin-Neto

BACKGROUND Drug-eluting stents (DES) represent a major advance in the management of ischemic heart disease, but the extrapolation of favorable results from clinical trials to the real-world practice has been criticized. OBJECTIVE To assess the use of DES in Brazil between 2000 and 2005. METHODS Using the database of the National Registry of Cardiovascular Interventions (CENIC - Central Naci...

2016
Christopher J. Ryerson Benjamin Tan Charlene D. Fell Hélène Manganas Shane Shapera Shikha Mittoo Mohsen Sadatsafavi Teresa To Andrea Gershon Jolene H. Fisher Kerri A. Johannson Nathan Hambly Nasreen Khalil Theodore K. Marras Julie Morisset Pearce G. Wilcox Andrew J. Halayko Mohammad Adil Khan Martin Kolb

Background. The relative rarity and diversity of fibrotic interstitial lung disease (ILD) have made it challenging to study these diseases in single-centre cohorts. Here we describe formation of a multicentre Canadian registry that is needed to describe the outcomes of fibrotic ILD and to enable detailed healthcare utilization analyses that will be the cornerstone for future healthcare planning...

Journal: :BMJ 2006
Geraldine Barrett Jackie A Cassell Janet L Peacock Michel P Coleman

OBJECTIVES To describe the views of the British public on the use of personal medical data by the National Cancer Registry without individual consent, and to assess the relative importance attached by the public to personal privacy in relation to public health uses of identifiable health data. DESIGN Cross sectional, face to face interview survey. SETTING England, Wales, and Scotland. PAR...

2015
Carl L Bose Melissa Bauserman Robert L Goldenberg Shivaprasad S Goudar Elizabeth M McClure Omrana Pasha Waldemar A Carlo Ana Garces Janet L Moore Menachem Miodovnik Marion Koso-Thomas

BACKGROUND The Global Network for Women's and Children's Health Research (Global Network) supports and conducts clinical trials in resource-limited countries by pairing foreign and U.S. investigators, with the goal of evaluating low-cost, sustainable interventions to improve the health of women and children. Accurate reporting of births, stillbirths, neonatal deaths, maternal mortality, and mea...

Journal: :Molecular genetics and metabolism 2011
Mary Lou Oster-Granite Melissa A Parisi Leonard Abbeduto Dorit S Berlin Cathy Bodine Dana Bynum George Capone Elaine Collier Dan Hall Lisa Kaeser Petra Kaufmann Jeffrey Krischer Michelle Livingston Linda L McCabe Jill Pace Karl Pfenninger Sonja A Rasmussen Roger H Reeves Yaffa Rubinstein Stephanie Sherman Sharon F Terry Michelle Sie Whitten Stephen Williams Edward R B McCabe Yvonne T Maddox

A December 2010 meeting, "Down Syndrome: National Conference on Patient Registries, Research Databases, and Biobanks," was jointly sponsored by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) at the National Institutes of Health (NIH) in Bethesda, MD, and the Global Down Syndrome Foundation (GDSF)/Linda Crnic Institute for Down Syndrome based in Denve...

2013
Emily Herrett Anoop Dinesh Shah Rachael Boggon Spiros Denaxas Liam Smeeth Tjeerd van Staa Adam Timmis Harry Hemingway

OBJECTIVE To determine the completeness and diagnostic validity of myocardial infarction recording across four national health record sources in primary care, hospital care, a disease registry, and mortality register. DESIGN Cohort study. PARTICIPANTS 21 482 patients with acute myocardial infarction in England between January 2003 and March 2009, identified in four prospectively collected, ...

Journal: :Sri Lanka Journal of Surgery 2021

Introduction
 
 Implant longevity is crucial in determining the clinical success of THA. Hence THA young patients will need a careful consideration as failure and revision rates are higher due to high functional demands. Method
 Reviewed latest evidence from 17th annual report National Joint Registry (NJR) United Kingdom 2020 Australian Orthopaedic Association Replacement (AOANJR...

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