The DCMI metadata schema registry has been developed as an authoritative source of DCMI metadata terms. The DCMI registry has an important role to enhance semantic interoperability of the metadata terms. From our experiences in the development of the DCMI registry, we have learned that the registry has large potential to serve as a center of various service functions related to metadata schemas...

This paper will introduce the Microsoft Windows Registry database and explain how critically important a registry examination is to computer forensics experts. In essence, the paper will discuss various types of Registry “footprints” and delve into examples of what crucial information can be obtained by performing an efficient and effective forensic examination. Many of the Registry keys that a...

AIM In 2008, the Danish National Chronic Lymphocytic Leukemia Registry was founded within the Danish National Hematology Database. The primary aim of the registry is to assure quality of diagnosis and care of patients with chronic lymphocytic leukemia (CLL) in Denmark. Secondarily, to evaluate adherence to national guidelines and to provide source data for research purposes. STUDY POPULATION ...

OBJECTIVE To analyze and report trauma registry data; to assess the validity, reliability, and feasibility of the trauma registry; and to discuss lessons learned from this event. METHODS A pre-designed trauma registry data was used for all injured patients admitted to Asir Central hospital after being involved in a major motor vehicle accident. A survey team registered and analyzed the trauma...

In a registry of volunteer bone marrow donors, the relation between registry size and probability of finding an exact or partial match for a random recipient cannot be theoretically derived because it depends on specifics of the human leukocyte antigen (HLA) haplotype frequencies in the donor and recipient populations. The relation must be explicitly calculated using empirically determined HLA ...

The NSDL Metadata Registry is designed to provide humans and machines with the means to discover, create, access and manage metadata schemes, schemas, application profiles, crosswalks and concept mappings. This paper describes the general goals and architecture of the NSDL Metadata Registry as well as issues encountered during the first year of the project's implementation.

In recent years there has been marked progress in the treatment of cardiovascular disease and, more specifically, in the case of the different clinical entities that are currently known as acute coronary syndrome. A key, and indispensable, factor in treating our patients has been the implementation of the concept of evidencebased medicine (EBM), used and recognized universally as the best clini...

In 1964 the ERA-EDTA Registry was started as one of the first renal registries in the world. This meeting report describes how this European registry has developed over the 50 years of its existence. Where the first report presented patient numbers, nowadays the Registry acts as a platform for collaborative renal research in Europe. In addition, it provides training in epidemiology methods to n...

RELEVANT LITERATURE Methods of Validation Several methods can be used to assess completeness of registry data. Completeness of registration can serve as an indicator of registry effectiveness an ideal registry will capture all cases of a given disease within a defined population. Completeness is defined as the proportion of diagnosed cases that are registered. Possible methods for estimating co...