BACKGROUND In a previous study, the objective burden of informal caregiving to patients with psychotic disorders amounted to 22 hours/week, and the subjective burden was huge with predominately anxiety and depression as main symptoms. In this study, determinants of the informal caregiving burden are analyzed to find foci for interventions to ease the size of burden. METHODS Patients with psyc...

The ageing of society is leading to significant reforms in long-term care policy and systems in many European countries. The cutbacks in professional care are increasing demand for informal care considerably, from both kin and non-kin. At the same time, demographic and societal developments such as changing family structures and later retirement may limit the supply of informal care. This raise...

BACKGROUND This paper describes both the use of and needs for informal caregivers of people with dementia, based on a questionnaire survey organized within the National Dementia Programme in the Netherlands. The National Dementia Programme is a quality collaborative of the Dutch Alzheimer's Association, the Institute of Quality of Healthcare (CBO) and the Knowledge Centre on Ageing (Vilans), in...

The human cost of advanced chronic obstructive pulmonary disease (COPD) for informal caregivers in Canada is mostly unknown. Formal care is episodic, and informal caregivers provide the bulk of care between exacerbations. While patients fear becoming burdensome to family, we lack relevant data against which to assess the validity of this fear. The purpose of our qualitative study was to better ...

BACKGROUND More than 90% of dementia patients are cared for by their general practitioners, who are decisively involved in the diagnosis, therapy and recommendation of support services. OBJECTIVE To test whether special training of general practitioners alters the care of dementia patients through their systematic recommendation of caregiver counseling and support groups. METHOD 129 general...

BACKGROUND While home mechanical ventilation (HMV) prolongs survival in selected groups of patients, its use is associated with progressive dependency in basic activities, and many users will require informal care in their homes. The workload assumed by the informal caregivers can have financial, physical, and psychological repercussions. Our objective was to study dependent patients on HMV, an...

The: Experiences and Challenges of Caregivers of Frail or Chronically III Elderly: An Integrative Review Hae-Ra Hall, PhD, RN 1) BACKGROill\rD: Social, legal, and economic factors have changed the delivery of care to elderly who are frail and/or chroniically ill. Increasing number of the elderly are now treated in the community, while living with or in close proximity to their family.It is ...

Abstract Identifying caregiver availability for patients with Alzheimer’s disease and related dementia (ADRD) can inform healthcare systems hospital administrations on appropriate discharge planning. However, data is not systematically collected in the system. Our objective was to use medical notes (from physicians, nurses, or social workers) assess types of caregivers hospitalized ADRD. We use...