Hemophilia associations should be recommended for educational programs for patients and caregivers. Hematologists and nongovernmental organizations can work together for lifelong educational programs. Finally, we recommend holding patient workshops twice a year as well as publishing simple books or brochures in each local language to improve the knowledge and therefore the quality of life of th...

Thomas Lehmann1; Katharina E. Hofer2; Michael Baumann1; Karin Hasler3; Alessandro Ceschi2; Hugo Kupferschmidt2; Gabriele Rohde4; Wolfgang Korte1 1Center of Laboratory Medicine and Hemostasis and Hemophilia Center St. Gallen, St. Gallen, Switzerland; 2Swiss Toxicological Information Centre, Associated Institute of the Zurich University, Zurich, Switzerland; 3Department of Emergency, Kantonsspita...

BACKGROUND Children with haemophilia have lower levels of fitness and strength than their healthy peers. We present the protocol of a study designed to determine whether an exercise intervention improves quality of life, aerobic fitness and strength in children with haemophilia. METHODS/DESIGN The study will be a randomised, assessor-blinded, controlled trial of exercise treatment. Seventy ch...

13.00-14.30 Introduction to the meeting Global haemophilia care: what can be learned from emerging countries? Chairs: J. Astermark (SE), P. de Moerloose (CH) Low-dose replacement and prophylaxis in emerging countries A. Srivastava (IN) Cross-border care: heterogeneity of haemophilia care between countries and its consequences on patients’ management C. Hermans (CH) How can wealthy countries hel...

Background: Together hemophilia A and B are categorized through spontaneous indoors bleeding excessive later on accidents or surgery. The biggest common places for into joints much less commonly in muscle tissues organs such as the talent kidneys. Objective(s): aim of study is to assess knowledge parents regarding health preventive measures self-care children. Method: a descriptive design carri...

Hemophilia A and B are X-chromosome linked bleeding disorders caused by deficiency of the respective coagulation factor VIII and IX. Affected individuals develop a variable phenotype of hemorrhage caused by a broad range of mutations within the Factor VIII or Factor IX gene. Here, were report the results of the molecular diagnosis in a five Costa Rican families affected with Hemophilia. Methods...

OBJECTIVE Hemophilia B is caused by coagulation defects in the factor IX gene located in Xq27.1 on the X chromosome. A wide range of mutations, showing extensive molecular heterogeneity, have been described in hemophilia B patients. Our study was aimed at genetic analysis and prenatal diagnosis of hemophilia B in order to further elucidate the pathogenesis of the hemophilia B pedigree in China....

Background: With the establishment of new technologies in the search for a cure for hemophilia, non-pharmacological treatments have had a more important role in increasing life expectancy, quality of life of children suffering from hemophilia disorders. The aim of the systematic review was a comprehensive understanding of Non-pharmacological treatment on Iranian childr...