Families affected by rare disease experience psychosocial reactions similar to families with prevalent chronic diseases. The ability to respond and manage the condition depends on psychosocial factors. This phenomenological study of 16 mothers of children with Alagille syndrome explored their lived experience in using online health communications to manage their chronic sorrow. Data consisted o...

Context: The spouse has a very important role to play in increasing the emotional and supportive resources of family as well patient adjustment. Therefore, understanding their experiences can lead health-care system improvement effective care support.Aims: This study was conducted explanation lived women with spouses mental illness.Settings Design: qualitative carried out using van Manen phenom...

background: the chronic kidney disease is a major health concern. the number of the elderly people with chronic renal failure has increased across the world. dialysis is an appropriate therapy for the elderly, but it involves certain challenges. the present paper reports uncertainty as part of the elderly experiences of living with hemodialysis. methods: this qualitative study applied max van m...

Resumo Objetivo Compreender a experiência vivida da mulher ao tornar-se mãe de um segundo filho. Métodos O desenho do estudo adota uma metodologia qualitativa com abordagem fenomenológica hermenêutica. A colheita dados foi realizada em duas creches área Leiria. Foram realizadas entrevistas fenomenológicas onze mulheres, filho, idade compreendida entre os 18 e 24 meses. As atividades desenvolvid...

Resumo Objetivo Compreender a experiência da empatia de enfermeiras com os recém-nascidos hospitalizados em Unidade Terapia Intensiva Neonatal. Métodos Pesquisa fenomenológica hermenêutica. Foram realizadas 11 entrevistas uma Neonatal, localizada Cuiabá/Mato Grosso, Brasil. A coleta ocorreu entre maio e agosto 2018. Os dados foram analisados acordo análise temática proposta por Max van Manen. R...