The purpose of this study was to determine whether the structure of children's self-concept, as rated by children themselves on the Self-Perception Profile for Children (SPPC; Harter, 1985), and the structure of children's competence, as rated by their parents on the Rating Scale of Child's Actual Behavior (PRS) and teachers on the Rating Scale of Child's Actual Behavior (TRS; Harter, 1985), ar...

A total of 24 subjects with diagnosis of spina bifida, 24 subjects (females, n= 12), ages 17 to 72 years, participated in a one-time arm ergometry exercise stress test. The aim of this study was to investigate the construct and concurrent validity of two rating of perceived exertion scales, the Borg 6-20 Scale and a newly designed WHEEL Scale in adolescents and adults with spina bifida. The res...

Children with spina bifida develop a wide variety of congenital and acquired hip joint deformities. Among these are contractures, subluxation or dislocation. This paper will review both the overall orthopedic care of a spina bifida patient with hip problems and provide a focused review of surgery management of hip deformities. Special emphasis is placed on the indications and contraindications ...

This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health manage...

OBJECTIVES To establish whether surgery can improve the neuropsychological functioning of young adult patients with spina bifida and apparent clinically arrested hydrocephalus showing abnormal intracranial pressure. METHODS Twenty three young adults with spina bifida and assumed arrested hydrocephalus (diagnosed as active or compensated by continuous intracranial pressure monitoring) underwen...

The tendency for sibs affected by non-syndromal neural tube defect (NTD) to have the same type of lesion was assessed retrospectively in a series of 66 affected sibships from the west of Scotland. Different schemes were used to classify the lesions: in the simplest classification into either anencephaly (including anencephaly-spina bifida) or spina bifida there was a tendency for spina bifida t...

This study examined the psychosocial adjustment of preadolescents with spina bifida in relation to a comparison sample of able-bodied preadolescents (8- and 9-year-olds; n = 68 in each sample). The study also examined the potential clinical utility of a narrowband multimethod, multi-informant, and multidimensional perspective on the assessment of psychosocial functioning in children and adolesc...