نتایج جستجو برای: registry national

تعداد نتایج: 429571  

Journal: :I. J. Functional Informatics and Personalised Medicine 2010
Chuck Penoza Robin Barnes Martin Chaparro Jerry Carney Brad Levin Matthew Chudy Sheri LaBonte

This registry has been developed through the collaboration of several health information organizations and Federal agencies, including the Centers for Medicare and Medicaid Services (CMS), the Department of Defense’s (DOD) Military Health System (MHS), the Agency for Healthcare Research and Quality (AHRQ), the National Institutes of Health’s National Cancer Institute (NCI), and the Health and H...

Journal: :Acta neurologica Scandinavica. Supplementum 2012
O Andersen

An overview of prevalence and incidence studies performed in Swedish centres is provided, showing improving coverage and methodology, notably the development in Gothenburg of the representative incidence cohort design. A common database for major Swedish centres was established in 1995, implementing the terminology of predictors from the Gothenburg cohort. By 2001, these databases were merged i...

2014
Marita Muscholl Martin Lablans Thomas OF Wagner Frank Ückert

Project goal OSSE (Open Source-Registersystem für Seltene Erkrankungen in der EU / Open Source Registry System for Rare Diseases in the EU) provides patient organizations, physicians and scientists with open-source software for the creation of patient registries. As a result, the national registry landscape is improved to comply with European principles regarding e.g. minimum data set and data ...

2012
William L. Holman

The Interagency Registry for Mechanically Assisted Circulatory Support (INTERMACS) is a North American national registry for mechanical circulatory support devices (MCSDs) that are used to treat advanced heart failure. Durable MCSDs that have been approved by the US Food and Drug Administration (FDA) are included in this registry; however, MCSDs that remain in FDA trials pending initial approva...

Journal: :Circulation 2012
William L Holman

The Interagency Registry for Mechanically Assisted Circulatory Support (INTERMACS) is a North American national registry for mechanical circulatory support devices (MCSDs) that are used to treat advanced heart failure. Durable MCSDs that have been approved by the US Food and Drug Administration (FDA) are included in this registry; however, MCSDs that remain in FDA trials pending initial approva...

Journal: :Clinical and experimental immunology 2013
B Gathmann S Goldacker M Klima B H Belohradsky G Notheis S Ehl H Ritterbusch U Baumann A Meyer-Bahlburg T Witte R Schmidt M Borte S Borte R Linde R Schubert K Bienemann H-J Laws G Dueckers J Roesler T Rothoeft R Krüger E C Scharbatke K Masjosthusmann J-C Wasmuth O Moser P Kaiser U Groß-Wieltsch C F Classen G Horneff V Reiser N Binder S M El-Helou C Klein B Grimbacher G Kindle

In 2009, a federally funded clinical and research consortium (PID-NET, http://www.pid-net.org) established the first national registry for primary immunodeficiencies (PID) in Germany. The registry contains clinical and genetic information on PID patients and is set up within the framework of the existing European Database for Primary Immunodeficiencies, run by the European Society for Primary I...

Journal: :Morbidity and mortality weekly report. Surveillance summaries 2017
Simple D Singh S Jane Henley A Blythe Ryerson

This report provides, in tabular and graphic form, official federal statistics on cancer incidence and mortality for 2013 and trends for 1999-2013 as reported by CDC and the National Cancer Institute (NCI). Data in this report come from the United States Cancer Statistics (USCS) system (1), which includes cancer incidence data from population-based cancer registries that participate in CDC's Na...

Journal: :iranian journal of public health 0
m ghaneie deputy of research & technology, ministry of health, treatment and medical education, tehran, iran. a rezaie n r ghorbani rn heidari m arjomandi m zare

due to the high incidence of deaths from breast cancer, high cost of treatment and limited resources, the need to formulate and implement effective programs in reducing the burden of disease is obvious. care, control and creation of cancer information system having an infrastructure from collection of minimum data sets (mds) are the top priorities of research in iran's ministry of health.this i...

Journal: :basic and clinical cancer research 0
kazem zendehdel cancer research center, tehran university of medical sciences, iran, department of medical epidemiology and biostatistics, karolinska institute, sweden zahra sedighi cancer research center, tehran university of medical sciences, iran jaleh hassanloo cancer research center, tehran university of medical sciences, iran azin nahvijou cancer research center, tehran university of medical sciences, iran

background: cancer registries are important infrastructure for cancer control programs. however most developing countries lack population based cancer registry. in iran there cancer incidence is estimated based on pathology-based cancer registry. in this study we evaluated results of the nationwide pathology-based cancer registry in iran. materials and methods: we compared age-standardized inci...

Journal: :middle east journal of digestive diseases 0
seyed alireza taghavi kamran bagheri lankarani maryam moini laleh hamidpour maryam ardebili zahra mansoorabadi

background inflammatory bowel diseases (ibd) are debilitating diseases that lead to a variety of problems in a patient's daily life and are a huge burden for the health care system. since this group of diseases are multifactorial and complex, long-term longitudinal studies are clearly needed to understand them better. a population-based registry (ibd-far) has been established in fars, a souther...

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