OBJECTIVES Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND), is a debilitating terminal condition. Informal caregivers are key figures in ALS care provision. The physical, psychological and emotional impact of providing care in the home requires appropriate assistance and support. The objective of this analysis is to explore the needs of informal ALS caregivers acro...

This article documents how biomedical researchers in the United Kingdom understand and enact the idea of "openness." This is of particular interest to researchers and science policy worldwide in view of the recent adoption of pioneering policies on Open Science and Open Access by the U.K. government-policies whose impact on and implications for research practice are in need of urgent evaluation...

Bibliographie: Backhouse, Maria/Mutter, Theo/Trzeciak, Miriam Friz: Mosambikanische Vertragsarbeiter*innen in der DDR. Interview mit Madgermanes Maputo, PERIPHERIE – Politik • Ökonomie Kultur, Nr. 165+166 (1-2022), S. 11-30. https://doi.org/10.3224/peripherie.v42i1.02-----Open-Access-Lizenz: Dieser Beitrag ist ab dem 05.07.2022 im Open Access unter Creative-Commons-Lizenz CC BY 4.0 (Namensnennu...

BACKGROUND In this single-site study, we evaluated the feasibility of a parent-clinician communication intervention designed to: identify parents' rationale for the phase I, do-not-resuscitate (DNR), or terminal care decision made on behalf of their child with incurable cancer; identify their definition of being a good parent to their ill child; and provide this information to the child's clini...

PURPOSE The main objective of this study was to assess quality of life (QoL) and treatment satisfaction in a group of patients with type 1 diabetes (T1D) and explore their needs regarding and their perception of QoL living with diabetes. MATERIALS AND METHODS Patients with type 1 diabetes attending the outpatient endocrinology clinics of a reference hospital were invited to participate in a c...

AIM To explore nurses' archived accounts of Matron Muriel Powell's management and leadership style and the impact of this on the implementation and sustainability of innovation in the workplace. BACKGROUND In popular discourse, the matron has become an emblem of leadership. Although the title disappeared in the UK in the late 1960s as part of the re-organization recommended by the Salmon Repo...

A child who alleges that they have been the victim of a crime will be interviewed by police officers. During a police interview it is important that the interviewer obtains the most accurate testimony possible from the child. Previous studies have shown that if children have their eyes closed during an interview they sometimes report more correct information. This paper includes two studies. In...

in many jurisdictions, psychiatric problems are intended for commutation. therefore, a forensic psychiatrist has an important role in detection of malingering. while several studies evaluate diagnostic tests, it is less known what symptoms are more likely to be imitated by malingerers.in a prospective study 45 malingerers, who were diagnosed according to interviews by two forensic psychiatrists...