BACKGROUND Family caregiving in the context of advanced disease in particular, can be physically and emotionally taxing. Caregivers can subsequently face bereavement exhausted with few supports, limited resources and a significant proportion will develop negative psychological and social outcomes. Although some research has attended to the bereavement experiences of family caregivers who had ca...

PURPOSE This project explored caregivers' perceptions regarding the barriers and facilitators to undertaking the post-stroke caregiving role, particularly as related to the health care system, with the ultimate goal of identifying potential strategies that would assist families in successfully undertaking the role. METHOD A qualitative study consisting of focus groups and individual interview...

Institutional caregiving is associated with significant deviations from species-expected caregiving, altering the normative sequence of attachment formation and placing children at risk for long-term emotional difficulties. However, little is known about factors that can promote resilience following early institutional caregiving. In the current study, we investigated how adaptations in affecti...

Severe mental illnesses have far-reaching consequences for both patients and their relatives. This paper reviews literature on the measures of caregiving consequences. Authors provide a condensed knowledge and research results in the area of caregiving consequences, especially both subjective and objective caregivers' burden. The consequences of care apply to carers' social and leisure activiti...

BACKGROUND Long-term care for the elderly is largely shouldered by their family, representing a serious burden in a hyper-aging society. However, although family dynamics are known to play an important role in such care, the influence of caring for the elderly on burden among caregiving family members is poorly understood. OBJECTIVE To examine the influence of family dynamics on burden experi...

This research investigates representations of emotion work and emotional labor in caregiving, the medium graphic novels. The study is based on a collection six contemporary novels that discuss relationships between older adults who are suffering from dementia or Alzheimer’s their family caregivers professional caretakers. Family caught complicated web new, emerging caregiving roles. We rely the...

Background: Family caregivers with continuous caregiving responsibilities are at increased risk for adverse physical and mental health outcomes. In response to the challenges of caregiving, a mobile system (iMHere 2.0) was developed support caregivers. The study's objective gather feedback from family older adults on current features iMHere 2.0 formulate design criteria future iterations system...

BACKGROUND Lack of state supported care services begets the informal caregiving by family members as the mainstay of care provided to the dependent older people in many Low and Middle Income Countries (LMICs), including India. Little is known about the time spent on caregiving, its cost and the burden experienced by these informal caregivers. We aimed to estimate the costs of informal caregivin...

Family Caregivers: The Backbone of Long Term Care Lynn Friss Feinberg, National Center on Caregiving Lynn Friss Feinberg, MSW, is Deputy Director of the National Center on Caregiving at the San Francisco-based Family Caregiver Alliance. She was director and first author of a recently completed 50-state survey, funded by the U.S. Administration on Aging, to profile the “State of the States in Fa...