INTRODUCTION: In collaboration with the FDA, the American Society of Plastic Surgeons together with the Plastic Surgery Foundation set out to develop a national registry (PROFILE) where all cases of Breast Implant-Associated Anaplastic Large Cell lymphoma (BI-ALCL) could be centralized. The registry was designed to capture all critical data elements needed to evaluate factors associated with AL...

BACKGROUND As a subregistry to the Western Denmark Heart Registry (WDHR), the Western Denmark Cardiac Computed Tomography Registry (WDHR-CCTR) is a clinical database established in 2008 to monitor and improve the quality of cardiac computed tomography (CT) in Western Denmark. OBJECTIVE We examined the content, data quality, and research potential of the WDHR-CCTR. METHODS We retrieved 2008-...

PROBLEM/CONDITION Amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig's disease, is a progressive and fatal neuromuscular disease for which no cure has been identified. Although ALS has no known definitive cause, familial ALS (a hereditary form) occurs in 5%-10% of cases. Many hypotheses have been formulated about what causes ALS, including chemical exposures, occupational exposur...

background: we studied the patterns of premenopausal and postmenopausal breast cancer incidence and its established risk factors in iran in 2010. in addition, we estimated the 5-year prevalence of breast cancer in the country. methods: we performed an internet and library literature review. we used national cancer registry data, demographic health surveys, national censuses and world bank data ...

OBJECTIVE In order to facilitate comparisons of pain rehabilitation programmes in Sweden and to enable audit spirals for single programmes as well as outcome studies, the Swedish Association for Rehabilitation Medicine initiated a national quality registry in 1995. PATIENTS Referred for rehabilitation due to pain-related disability. METHODS The registry collects standardized self-reports be...

Although much health services research has been conducted using national health insurance claims data in Korea, the validity of this method has not been ascertained. The objective of this study was to validate the use of claims data for health services research by comparing incidence rate of cancers found using insurance claims data against rates of the national cancer registry of Korea. An alg...

In this paper, we recommend and promote global standards of the e-Trade process on the basis of ebXML & web services. For the ebXML Frameworkbased e-Trade to be facilitated, it is urgent for each country to implement and use national ebXML registry and standardize electronic documents, electronic catalog and electronic payment. In UNCEFACT, ebXML-based UN Central Registry & Repository is in the...

abstract: introduction: this study was conducted to determine the outcomes of the project of ‘integration of breast cancer screening and early detection’ into primary health care (phc) system and to detect the incidence rate, mortality rate and the stage of reported breast cancers, during the timeframe of the project in shahre-kord. method: a prospective cohort study was conducted, reviewing me...

BACKGROUND Multiple myeloma (MM) is a cancer of plasma cells with an incidence of 4.8 cases per 100,000 population in the Czech Republic in 2014; the burden of MM in the Czech Republic is moderate when compared to other European countries. This work brings the latest information on MM epidemiology in the Czech population. MATERIAL AND METHODS The Czech National Cancer Registry is the basic so...