BACKGROUND Rehabilitation personnel need to be sensitive to the cultural aspects that constitute the environment of a disabled child's family life. OBJECTIVES The aim of this study was to gain insight on how families experience parenting of disabled children and how the families experience the support provided by the rehabilitation system in Malawi. METHOD An anthropological field study com...

PURPOSE This study investigated the feasibility of integrating three diverse methods for studying disabled youth's experiences of activity settings: standardized questionnaires, qualitative methods and physiological measures. The article describes a case study of data collection in a real-life setting to outline the opportunities, challenges and lessons learned for future research. METHODS Th...

The paper addresses ways in which litigation serves a role in the reform of services for mentally disabled children-and !adults. Effects on deinstitutionalization are emphasized. Benefits of using litigation to secure the rights of mentally retarded persons include public awareness, quality assurance standards for institutions, and the development of new programing strategies. Drawbacks to liti...

This study was carried out in a governmental school for mentally disabled children in El Minia. We assessed maternal adaptation and the relationship between maternal sociodemographic factors and adaptation as well as examining maternal distress. All 100 mothers with children aged 6-18 years attending the school were recruited in the study. Three tools were used: demographic data sheet, adaptati...

H. Daoud, MD, FRCS, Lecturer, McGill University, Montreal; Lake Shore Hospital. Montreal. T. O’Farrell. MD. BSc, CSPQ. Assistant Professor, Department ofOrthopaedic Surgery, McGill University. Royal Victoria Hospital, Montreal: Shriners Hospital for Crippled Children, 1529 Cedar Avenue, Montreal, Quebec, Canada H3G 1A6. R. L. Cruess. MD, FRCS(C). Dean ofthe Faculty ofMedicine, McIntyre Medical ...

Increasing children’s and young people’s participation in decisions, about their own care and about service development, is a policy priority. Although in general participation is increasing, disabled children are less likely to be involved than nondisabled children and it is unclear to what extent children with complex needs or communication impairments are being included in participation acti...

Data on the incomes of families with a severely disabled child were obtained by replicating the Family Expenditure Survey. These data were compared with income data from a control group of families with children, drawn from the FES for the same period. The participation rates, hours, and earnings of the women with a disabled child were all found to be substantially lower than those of women in ...

BACKGROUND Parents of disabled children often seek support from their peers. The shared experience between parents appears to be a crucial mediating factor. Understanding how a sense of shared experience is fostered can help to design and evaluate services that seek to provide peer support. METHODS We carried out a qualitative study involving semi-structured interviews and focus groups. Parti...

BACKGROUND Parents of disabled children are encouraged to seek peer support. Delivering one-to-one support requires resources; therefore, investigating how these services may impact on families and those providing the service is important when evaluating such services. METHODS We carried out a qualitative study involving semi-structured interviews and focus groups. Participants were 12 parent...

Community-based peer social networks of young boys with developmental delays and parental arranging and monitoring of their child's peer contacts were examined. Comparisons were made to matched groups of children who were developing typically and to children with communication disorders. Results showed more limited peer social networks for both groups of children with disabilities based primari...