نتایج جستجو برای: hospital registries

تعداد نتایج: 408372  

Journal: :Stroke 2013
Simona Sacco Francesca Pistoia Antonio Carolei

C ommunity-based registries are considered the best source of information on stroke incidence, risk factors, characteristics , and outcome. They can be used for developing adequate strategies for stroke care and prevention. Criteria to perform an ideal stroke incidence study had been defined and refined in the past 2 decades and include standards for definitions, methods , and data presentation...

2016
Edoardo S Pescatori

Before these two studies the published data on penile implant surgery consisted mostly of single-surgeon small series and retrospective experiences, rather than prospective, large, multicenter data collection [3-7]. Accordingly, it has been advocated the creation of prospective databases i.e. clinical data registries also to monitor more accurately the results of surgery, and to have solid grou...

2007
Giridhar Manepalli

Federating metadata registries introduces a range of problems to address, from identifying the commonality in data models across registries, to agreeing on a well-defined data dictionary. As more and more registries participate in the federation, the number of problems to solve can potentially rise to unmanageable levels. While solutions to these issues are researched, generic federation system...

Journal: :Epilepsia 2001
E Beghi J F Annegers

The risk of major malformations in the offspring of mothers with epilepsy receiving antiepileptic drugs is 4--8% compared to 2--4% in the general population. Risk factors include daily dose and polytherapy. Selected drugs have been found to be associated with a higher risk of specific malformations (congenital heart defects and cleft palate with phenytoin and barbiturates; neural tube defects w...

Journal: :The New England journal of medicine 2004
Jack V Tu Donald J Willison Frank L Silver Jiming Fang Janice A Richards Andreas Laupacis Moira K Kapral

BACKGROUND Government legislators and research ethics boards in some jurisdictions require all patients to give written informed consent before enrollment in clinical registries. However, the effect of such a requirement on the use of clinical registries and the extent to which registry data can be generalized remain uncertain. METHODS We examined the effectiveness of a comprehensive attempt ...

2017
Sahar Hassan Ase Vikanes Katariina Laine Khaled Zimmo Mohammad Zimmo Espen Bjertness Erik Fosse

BACKGROUND Electronic-health (e-health) provides opportunities for quality improvement of healthcare, but implementation in low and middle income countries is still limited. Our aim was to describe the implementation of a registration (case record form; CRF) for obstetric interventions and childbirth events using e-health in a prospective birth cohort study in Palestine. We also report the comp...

Journal: :European journal of cancer 2015
R Zanetti I Schmidtmann L Sacchetto F Binder-Foucard A Bordoni D Coza S Ferretti J Galceran A Gavin N Larranaga D Robinson L Tryggvadottir E Van Eycken V Zadnik J W W Coebergh S Rosso

UNLABELLED Cancer registries must provide complete and reliable incidence information with the shortest possible delay for use in studies such as comparability, clustering, cancer in the elderly and adequacy of cancer surveillance. Methods of varying complexity are available to registries for monitoring completeness and timeliness. We wished to know which methods are currently in use among canc...

Journal: :Circulation. Cardiovascular quality and outcomes 2014
Mathew J Reeves Adrienne V Nickles Stacey Roberts Rochelle Hurst Sarah Lyon-Callo

BACKGROUND Accurate case ascertainment is essential for clinical registries to be valid and representative. We assessed case ascertainment in the Michigan Stroke Registry by linking to a statewide hospital discharge database (Michigan Inpatient Database [MIDB]). METHODS AND RESULTS In 2009, all ischemic stroke cases submitted by 30 registry hospitals were linked to ischemic stroke discharges ...

Journal: :BMJ 2018
Blessing N R Jaja Gustavo Saposnik Hester F Lingsma Erin Macdonald Kevin E Thorpe Muhammed Mamdani Ewout W Steyerberg Andrew Molyneux Airton Leonardo de Oliveira Manoel Bawarjan Schatlo Daniel Hanggi David Hasan George K C Wong Nima Etminan Hitoshi Fukuda James Torner Karl L Schaller Jose I Suarez Martin N Stienen Mervyn D I Vergouwen Gabriel J E Rinkel Julian Spears Michael D Cusimano Michael Todd Peter Le Roux Peter Kirkpatrick John Pickard Walter M van den Bergh Gordon Murray S Claiborne Johnston Sen Yamagata Stephan Mayer Tom A Schweizer R Loch Macdonald

OBJECTIVE To develop and validate a set of practical prediction tools that reliably estimate the outcome of subarachnoid haemorrhage from ruptured intracranial aneurysms (SAH). DESIGN Cohort study with logistic regression analysis to combine predictors and treatment modality. SETTING Subarachnoid Haemorrhage International Trialists' (SAHIT) data repository, including randomised clinical tri...

2017
Pedro Sernadela Lorena González-Castro Claudio Carta Eelke van der Horst Pedro Lopes Rajaram Kaliyaperumal Mark Thompson Rachel Thompson Núria Queralt-Rosinach Estrella Lopez Libby Wood Agata Robertson Claudia Lamanna Mette Gilling Michael Orth Roxana Merino-Martinez Manuel Posada Domenica Taruscio Hanns Lochmüller Peter Robinson Marco Roos José Luís Oliveira

Patient registries are an essential tool to increase current knowledge regarding rare diseases. Understanding these data is a vital step to improve patient treatments and to create the most adequate tools for personalized medicine. However, the growing number of disease-specific patient registries brings also new technical challenges. Usually, these systems are developed as closed data silos, w...

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