Family caregivers are the backbone of the long-term care support system within the home environment. Comprehensive caregiver support programs require collaboration and coordination within the system. A new public health concept, Vade Mecum, aims to harmonize and professionalize family caregiver support initiatives in geriatric care settings in the Euregion Maas-Rhine. Exploration of the new con...

A chronic disease (e.g., diabetes, cardiovascular disease, stroke, hypertension, dementia, some cancers, rheumatological diseases, human immunodeficiency virus) can occur and cycle in flare ups throughout the lifetime. Chronic illnesses, with their effect on the patient’s symptoms, mood, and need for emotional and physical support, exert a burden on family members. Additionally, families influe...

BACKGROUND Providing informal support to someone with frontotemporal dementia (FTD) could be very stressful. Clarifying the relationship between patient behavioral problems and caregiver health could spur future research on effective symptom management strategies. METHODS Sixty-one FTD family caregivers participated in a postal survey. RESULTS Patient symptom severity was negatively associa...

Abstract Social impairments characteristic of autism spectrum disorder (ASD) are evident in early childhood and often worsen. Research indicates including caregivers social skills groups may increase generalization for child outcomes, while also benefiting by increasing their self-confidence ability to coach child. Further, there be an impact on the entire family. This pilot study examined bene...

Family caregivers are responsible for the home care of over 34 million older adults in the United States. For many, the elder family member lives more than an hour's distance away. Distance caregiving is a growing alternative to more familiar models where: 1) the elder and the family caregiver(s) may reside in the same household; or 2) the family caregiver may live nearby but not in the same ho...

Sixty ethnographic interviews with 15 family caregivers for frail older people living in the community were analyzed to understand the meaning of activity in caregiving. Schön's (1983) reflection-in-action framework was used to organize the data. Three goals of caregiving activity were derived: (a) getting things done, (b) achieving a sense of health and well-being for the care receiver, and (c...

PURPOSE AND DESIGN Most of the 5.4 million Americans with dementia are cared for by family members who experience care needs and time constraints. This quasi-experimental study examined the experience of using a psychosocial assessment instrument to understand caregiver needs delivered in an interview versus a self-administered web-based format. METHODS Ten family caregivers were randomized t...

OBJECTIVES: To determine the factors associated with a home death among older adults who received palliative care nursing home services in the home. METHODS: The participants in this retrospective cohort study were 151 family caregivers of patients who had died approximately 9 months prior to the study telephone interview. The interview focused on the last year of life and covered two main area...

BACKGROUND This study explored the effectiveness of family psycho-education in reducing patients' symptoms and on family caregiver burden. METHODS Seventy Iranian outpatients with a diagnosis of schizophrenia disorder and their caregivers were randomly allocated to the experimental (n = 35) or control groups (n = 35). Patients in the experimental group received antipsychotic drug treatment an...